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Oeliac Disease And Lactose Intollerant

joalabbs

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joalabbs Newbie
joalabbs
Posted

Hello all, I have three great kids. Two of them, Alex 11 & Abbey 8, have celiac disease. Alex has just recently been diagnosed as being lactose intollerant. He has many other issuses as well. He is very angry. I am hoping someone might have some suggestions on how to cheer the kid up, and what to feed him without hurting him. Thanks,

joalabbs

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Mango04 Enthusiast
Mango04
Posted

What kinds of foods does he like to eat? There are lots of great kid-friendly substitutes out there.

lonewolf Collaborator
lonewolf
Posted

I have an 11 year old son who has been off milk for his whole life and just recently we found out he is gluten intolerant. He has some behavioral issues, mostly attention problems rather than being "naughty" and a lot of negativity. He was very angry when he was told he couldn't have wheat/gluten anymore. It's been a few months and he's doing much better. The attention problems have been clearing up some and the anger has subsided. I notice a lot of negativity when he eats something questionable, like Easter candy that I didn't have a chance to check on before he devoured it.

We've tried cheering him up by doing things that aren't associated with food - going fishing, playing more baseball out in the yard, letting him have a few more turns on the computer, etc. And I've made a lot of special treats for him - more than usual. All my kids (I have 4) have enjoyed homemade cookies, brownies, cakes, etc. and it makes my son feel good that I make "special" food that everyone likes that really is for him. He's really into popcorn now too. We've been experimenting with different flavors and seasonings to put on it. Sugar, cinnamon, chocolate chips, garlic powder - he likes all of these.

Good luck!

kabowman Explorer
kabowman
Posted

I have a 12YO son that is lactose intolerant but not gluten-free. He eats sorbets (you would have to check for ones that are gluten-free) for desert. That seems to have eased the "pain" of giving up a food he ate at every meal plus all the stuff in between. Hoping we don't have to go gluten-free yet too but I think that is coming...

And, like most of us, the longer he is LF, and he has something with regular milk, the more severe his symptoms which helps him stay away from milk products. He cannot even handle the hard cheeses (cheddar) like many people can BUT he is OK with lactaid milk so I am not worried about casien intolerance yet.

tarnalberry Community Regular
tarnalberry
Posted

If he's just lactose intolerant (not casein intolerant), then he can use lactaid (the lactase enzyme) to still be able to have milk, unless he's REALLY REALLY intolerant. And in that case, there's still an awful lot of other foods out there he can have, you'll just have to start experimenting and trying a lot of new foods.

mmaccartney Explorer
mmaccartney
Posted

We get chocolates from this place:

Open Original Shared Link

I live nearby and have spoken with the owners. They are quire serious about dairy free, and gluten free as well.

My children are allergic to milk, eggs, and all nuts. I can't have any milk or gluten and their under diagnosis for celiac, but are still gluten-free at this time. We haven't run into any issues with their candies yet.

Also, the allergy grocer has several good candies as well:

Open Original Shared Link

Their all expensive, but it's worth it for their smiles :)

  • 2 weeks later...
marja Newbie
marja
Posted
Hello all, I have three great kids. Two of them, Alex 11 & Abbey 8, have celiac disease. Alex has just recently been diagnosed as being lactose intollerant. He has many other issuses as well. He is very angry. I am hoping someone might have some suggestions on how to cheer the kid up, and what to feed him without hurting him. Thanks,

joalabbs

There are so many things he still can eat. I've a 2 year old celiac and lactose intolerance and a 7 year old who has PDD NOS...for these children Gluten are also poisson and milk also so we try to keep him on the same stuff his brother gets and for everything i normally use milk in it i now use soya or goatmilk and there are really a lot of things you can make like that or buy. A lot of people has both the problems and the lactose intollerancy can be for a couple of years. I really hope so.

For my PDD son not eating gluten and milk worked out great for a lot of other things so when he noticed that he will find out himself that he is feeling much better!

Good luck

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      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
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      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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    • knitty kitty
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    • lizzie42
      Son's legs shaking

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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