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mis-chiff

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mis-chiff Explorer
mis-chiff
Posted

I am diagnosed (biopsy) 2 years ago. I am 41 years old.

I have been sick since giving birth in 1983....I am so grateful to

find this forum. I still don't know what I can and can't do!

But for what I see so far, looks like I'm in the right place!

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Guest nini
Guest nini
Posted

welcome to this board, feel free to vent away about frustrations, share joys and accomplishements and just chit chat with other celiac and gluten intolerant individuals!

jaten Enthusiast
jaten
Posted

Welcome! As a member just since December, let me say, you're in the right place. I've never found an online forum that was so helpful and worth my time. Ask whatever questions you have. This is a "there are no dumb questions" environment.

mouse Enthusiast
mouse
Posted

Welcome to the forum. I only joined summer of 2005 and had been gluten-free for over a year. But, I learned more here then I did with my over 300 hours of on line research. This is a great place to get answers. And as everyone said "there are no dumb questions".

Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

You have found a place that has a great bunch of people who are supportive, helpful, knowledgeable and great listeners when you need to vent!

As the others have said, our motto is "The only stupid question is the one not asked". Also, don't be shy - we've had pretty candid discussions about every kind of poop out there! We're definitely not queezy here! We also enjoy celebrating when someone has a nice, normal "O'Henry"! :lol:

Karen

schuyler Apprentice
schuyler
Posted

Welcome to the boards here! Everyone is awesome and really helpful, so as everyone else has said, don't be afraid to ask questions or join in on the discussions. You've joined a great group here!

Danielle

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the board. this helpful group of people will have you gluten-free in no time! :-)

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evie Rookie
evie
Posted

:) welcome chiff. I have been here only a month and have learned so much from the very helpful members. some have had diagnosis a long time some only a few months like myself. we learn from all!!

Feel free to ask questions...you will probably get your answer. evie ;)

mis-chiff Explorer
mis-chiff
Posted
  • Author

Thanks everyone for your welcome. I was diagnosed in Dec 2003.

At that time, like the other member stated, over 300 hours of online stuff.

There is lots of information now, but as you all well know, it's hard

to get the right information. I struggled for the first while.

But - I still don't know how to cook fancy stuff. So, quick fixes for me...:)

I am looking forward to learning more, but still keeping my site

simple for the newbies. I needed a quick fix on an extremely tight budget, that of course

changed because of this. 3 family members and they hate my food...lol so lots of meal preping.

lots more information now though. thanks again :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Welcome to the board. I come here everyday to read the posts and I swear I still learn more and more everyday. I thought somethings I knew the answers too, and boy was I off!

Just dont be afraid to ask anything! someone here will know the answer

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  • Recent Activity

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      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      results from 13 day gluten challenge - does this mean I can't have celiac?

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      results from 13 day gluten challenge - does this mean I can't have celiac?

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  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
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