Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie


lsmith2468

Recommended Posts

lsmith2468 Newbie

HI All!

I was diag about 2 months ago, and so far have been doing ok, I've sorta been following an Atkins thing figuring that carbs and wheat have a lot in common so if avoid them both I'll be okay, but I do miss bread. My question for all is this - why do the recipes seem to assume that if you're going wheat-free, you automatically want to go whole- hog healthnut? For instance, I found a bread online made with rice, and it's advertising is all about "all-natural, organic, honey, no preservatives" and so forth. I'm sorry, but I want bread that's regular old BREAD, gimme back my Wonder and my HomePrideButtertop, just take out the wheat??? Can it happen or am I stuck being "healthy" now? I don't really like the taste of any of the substitutes I've found so far, but I suspect it has more to do with the honey and such than the flour used, because I have very sensitive taste buds and I can tell it's the honey I'm tasting and not liking...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



plantime Contributor

Hi, welcome to the board! gluten-free flours do not act or taste like wheat flours, so we have to use other things in them to make them stick together and fluff up. Sadly, your tastebuds will just have to get used to other things. I miss my bread and cakes, but I have found that I can get used to the flavor and texture of gluten-free ones. It does take some adjusting to, but you can do it!

burdee Enthusiast

I learned I was gluten intolerant (described my celiac symptoms to a naturopath who said skip the tests, go gluten-free ASAP) 6 weeks ago. After previously learning how to control my weight with a nondiet approach (eat ONLY when hungry, foods which really satisfies you, and STOP eating when satisfied NOT stuffed), I wanted to avoid feeling deprived when I went gluten free. So I found gluten-free substitutes for my favorite types breads, pastries (esp. cookies and recipes for fruit breads) and hot cereals ASAP. I happen to LOVE dense, chewy breads and pastries, so I also love most heavy gluten-free breads and pastries (finding a heavy cereal was more challenging but cooked rice bran and quinoa flakes worked for me). However, in my search for suitable gluten-free breads I found many which were TOO light and fluffy for me (I HATE Wonderbread) through Ener-G foods (a local Seattle gluten-free retailer) which sells their products online.

If you're looking for low carb, but light, fluffy (Wonderbread) substitutes I would recommend Ener-G Foods': Light Brown Rice Bread, Light White Rice Bread, and Light Tapioca Bread. ALL of those are reduced carb if you're worried about carbs. (I just listen to my body cues, rather than count carbs, calories or fat grams, so low carb bread seems like an oxymoron to me!) Their top selling breads are White Rice Bread and Tapioca Bread (which I assume are also pretty close to Wonderbread to be top sellers). Also their Corn Loaf is low in calories, high in fiber and looks and feels just like Wonderbread to me. I have personally 'squished' the Light Brown Rice Bread and the Corn Loaf (too light for me ;) ) and given those away to my celiac friend who wants a Wonderbread type of bread. You can find Ener-G Foods online at www.ener-g.com or call them tollfree at 1-800-331-5222. However, I'm sure there must be other gluten-free bakeries/retailer who make Wonderbread types of gluten-free bread, since many celiacs want breads which look, feel and taste like white bread. Perhaps someone else will post info about their favorite local gluten-free bread retailer. :)

If you're interested in gluten-free pasta that stays 'al dente' when cooked, I like 'Tinkyada' brand, but I heard at my local GIG meeting this week that the "Lundverd" brand and the Westbrae Corn Pasta stays 'al dente' even with reheating the next day as leftovers.

There are SOOO many online gluten-free retailers, which may be located near you or distribute their products to your local stores. Two websites which list sources for gluten free foods are: www.glutensolutions.com and www.gluten free.com. If you like to bake, there are many gluten-free cookbooks with bread recipes. Our local celebrity Bette Hagman has written some great bread recipe cookbooks. I also have gluten-free cookbooks by Karen Robertson and Connie Sarros. You can check www.amazon .com for all those books.

What helped me stay positive and motivated to go gluten free (besides eliminating my excruciatingly painful reactions to gluten) was thinking 'substitution' rather than 'deprivation'. So if you find a gluten-free product you don't like, ask around or try again. There's probably one more suited to your tastes. Or you can always send me the dense, cardboard chewy gluten-free breads you don't want!! :lol:

KAthyB Newbie

If you do without long enough you may be more tolerant of the new taste and texture of the gluten-free products. I did this with my daughter who refused all the gluten-free substitutes and stuck to meat, fruit, veges and dairy and after 3 months she is coming around and trying breads and other baked goods. I get what you mean about the "health food" thing and it is frustrating.

Kathy

Donna F Enthusiast

he he, I know EXACTLY what you mean! I've gotten lots of gluten-free foods online and in specialty stores and it's not just gluten-free, they make it diary-free, egg-free, cassein-free....it makes you wonder what IS in it!!!

I'm with you. I like the good 'ol wonderbread type. I just found something that at least TASTES like it - but still a little dense. It's the white bread from Kinnikinnick Foods. I also got hamburger and hotdog rolls (haven't tried them yet).

-donna

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,957
    • Most Online (within 30 mins)
      7,748

    konny heigle
    Newest Member
    konny heigle
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.