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Ughhh!


Becky6

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Becky6 Enthusiast

I have been feeling icky the past 4 days. My joints and body ache, neuropathy is back in my fingers, brain fog, migraine or nasty headache every day and indegstion! I have been gluten-free for 5 months now and have been feeling great!! I am sure I did not get gluten as I have not gotten any tummy issues. But I am not sure what it is!! I hope it is not another food intolerance! Any thoughts?


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Calicat Newbie

Becky,

Have you added anything new to your diet recently? Even supplements or vitamins? I started feeling a bit better after eliminating gluten but found that I had problems with other foods as well (all grains/beans etc). A number of us have reacted to things in nutritional supplements that are supposedly 'allergen free.' It seems as though brain fog, migraines and aches can be caused by MSG and other additives too.

The thread "OMG...I Think I'm on to Something" on the board has a discussion that's helped me a lot. It's concerning MSG and the names it is hidden under...there are at least a few of us who have been gluten free but are still having problems, and are wondering if hidden MSG has been making us sick.

Hopefully you'll find something helpful there. I'll keep my fingers crossed that you figure out what's been making you feel bad, and that you start to get some relief. :)

  • 2 weeks later...
JodiC Apprentice

Maybe you have the flu.

Guest nini

maybe just a virus... if you are being really careful about cc, and you haven't added anything new, maybe double check your products to make sure an ingredient hasn't changed, but more likely a virus... hope you are feeling better!

CarlaB Enthusiast

I thought I got glutened the other day because the brain fog was starting to set in. The next day I woke up with a head cold and never got the stomach symptoms. Fortunately, the cold went away in a day or two, unlike the week to ten days I used to get them before going gluten-free.

So, you could just have a virus like someone mentioned. It's easy to always blame it on gluten especially when brian fog is involved!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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