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Soy Intolerance

GlutenFreeAl

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Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I *think* I may be soy intolerant. My most obvious symptom is a depression that comes out of absolutely nowhere. I get ANGRY or I despair for no reason. I want to hurt myself or inanimate objects.

I used to feel like this every night--go to bed depressed, then wake up fine in the morning. After going gluten-free, that stopped, except for three major times. those three times I could trace it back to soy oil, soy lecithin, and cross-contamination from a facility that also uses soy.

The soy oil by far gave me the worse reaction. Immediate stomachache, smelly, painful gas, reflux, headache/depression/fatigue that lasted several days. The soy lecithin and soy CC only gave me neurological symptoms of depression, headache, and fatigue, although it's possible I can blame some gas on it too. And possibly acid reflux.

  • 3 months later...
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jcmi10236 Newbie
jcmi10236
Posted

How can you know if its the gluten or /and the soy? Most of the time they are both in a product. I am suspecting soy also. What product can I try thats just one or the other?

I react to soy much the same as to gluten. And in fact, soy can destroy the villi as well.

mushroom Proficient
mushroom
Posted

You might try some tofu, or some edamame beans.

  • 7 months later...
cyoshimit Apprentice
cyoshimit
Posted

I recently confirmed my intolerance to soy. My heart rate slowed, fatigue, shortness of breath, headaches, dizziness. Its been 8 days since I ingested soy. It is pretty dibilitating. I have to eat a small snack or meal every couple of hours to supplement my energy. I am also loading up on b-vits, c-vit, & calcium to replenish what I can what my body isn't absorbing. I am slowly losing my patients with myself over my recovery time. Life was good and active then it came to a halt with this soy reaction. no work & no school.

Anyone have similar experiences? Tips? Or how long it took you to recover?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I recently confirmed my intolerance to soy. My heart rate slowed, fatigue, shortness of breath, headaches, dizziness. Its been 8 days since I ingested soy. It is pretty dibilitating. I have to eat a small snack or meal every couple of hours to supplement my energy. I am also loading up on b-vits, c-vit, & calcium to replenish what I can what my body isn't absorbing. I am slowly losing my patients with myself over my recovery time. Life was good and active then it came to a halt with this soy reaction. no work & no school.

Anyone have similar experiences? Tips? Or how long it took you to recover?

A reaction can last days, weeks, or longer, depending on how much you consumed, and your state of health in general.

It's pretty miserable, but seems to just need to run it's course?

You might try adding coconut oil to your diet? It feeds your brain just like glucose and has anti-inflamatory/healing properties. A dose of at least 2-3T per day has helped me. I add it to my morning coffee, use it like I would butter on cooked veggies, and use it to cook with. I really like the organic extra virgin Nutivia brand, which I buy online.

Look it up. You might be surprised how beneficial it is in your diet.

Some people find that taking a long soaking bath in epsom salts helps pull toxins from the body too.

Good luck. I hope this passes soon for you.

  • 2 weeks later...
Carebear Apprentice
Carebear
Posted

Does anyone else find that they react to soy flour much worse than tofu etc? Soy flour (in biscuits/cakes etc) has a really quick reaction with me - I get some similar reactions to my coeliac ones - bloating/gas etc, but I think things like tofu/gluten-free tamari are OK...

I've seen that soy has a high risk of cross contamination in the fields as it is grown in rotation with wheat. If you're bothered by soy flour, maybe that could be the problem? I wish I had those at home test strips...

  • 2 weeks later...
Maryw88 Apprentice
Maryw88
Posted

For those of you that are also reactive to soy, what do your reactions look like?

I'm starting to suspect that I'm reacting even stronger to soy than I am to gluten, and DANG does soy hide in a lot of places!

Does anyone have a soy-free chocolate recommendation? I can handle giving up wheat pasta, but CHOCOLATE?? <_<

For me soy brings almost immediate gastro reactions. MISERY! Mostly very unpleasant gas and stomach cramping. I am more reactive to soy than gluten. Its really difficult to find gluten-free goodies that don't contain soy. I mainly stick to whole, natural foods that I prepare myself. For gluten-free foods my favorite is udi's. Great breads, cookies, and other goodies.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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