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Celia the Celiac

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Celia the Celiac Apprentice

Hey all,

I haven't been on in a while. Alot going on. I've been gluten free for about four months now. This weekend I got glutened for the first time I think. I've had such a bad reaction that I've had to leave work today. Really dizzy....excrusiating amounts for gas and loose bowels. Makes me wonder if after you've totally abstained from gluten, how if you come in contact with it, you react stronger that ever before. I sure wish my life and health would just balance out properly. I get so discouraged having to deal with this ALL THE TIME. Somebody out there that's got a handle on this....and please say some words of encouragement for this chick....

Celia


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jerseyangel Proficient
Hey all,

I haven't been on in a while. Alot going on. I've been gluten free for about four months now. This weekend I got glutened for the first time I think. I've had such a bad reaction that I've had to leave work today. Really dizzy....excrusiating amounts for gas and loose bowels. Makes me wonder if after you've totally abstained from gluten, how if you come in contact with it, you react stronger that ever before. I sure wish my life and health would just balance out properly. I get so discouraged having to deal with this ALL THE TIME. Somebody out there that's got a handle on this....and please say some words of encouragement for this chick....

Celia

Hi Celia--good to see you back! Sorry you got glutened--that sucks :angry: . But the first time in 4 months--not bad--you must have really gotten a handle on the gluten-free diet pretty quickly! It is true that for some of us, the longer we're off gluten, the stronger our reactions become to smaller amounts. All that means is that we have to continue to be diligent. I hope your reaction passes quickly, and don't worry--it gets easier the longer you do it. :)

Thx4noticingMe Newbie
Hey all,

I haven't been on in a while. Alot going on. I've been gluten free for about four months now. This weekend I got glutened for the first time I think. I've had such a bad reaction that I've had to leave work today. Really dizzy....excrusiating amounts for gas and loose bowels. Makes me wonder if after you've totally abstained from gluten, how if you come in contact with it, you react stronger that ever before. I sure wish my life and health would just balance out properly. I get so discouraged having to deal with this ALL THE TIME. Somebody out there that's got a handle on this....and please say some words of encouragement for this chick....

Celia

I've been diagnosed for eleven months (spent 6 months in denial, but read everything I could find on the subject) I've been gluten free for five months now and you are right, this isn't fun. Because I have done both the denial and would cheat and then went cold turkey NO GLUTEN, I can tell you keeping the gluten free all the time is the way to go.

You already found out how bad your body feels when given gluten, so it's not really an option. I try to focus on eating all those fresh and whole foods. We are so used to our American diet- processed food and all the chemicals, not to mention the extra calories. I am a born junk food, fast food, convientent food person. My life is very busy, so I want my food FAST! FAST! FAST! I didn't have time to cook all meals from scratch. Maybe being celiac is kinda a blessing in disguise, I have to slow down, enjoy the food I am eating because of the time and effort I put into it. My daughter (18 yrs) is also celiac and when she is at her lunch break at work, many people comment on her healthy eating habits, especially for one so young. She grumbles to herself that she really doesn't have an option, but that doesn't stop her from finding a new treat each month that is gluten free and indulging whenever she feels the need. (Current favorite is Giant Hershey Bar w/almonds).

Find a way to treat yourself and you are on a brand new adventure of food discovery. I am too! So, I watch the Food Network and check online recipes that use whole, fresh ingredients. And I am feeding a family of five (2 gluten free/ 3 on normal diet) And all of us are picky, so it adds to our fustration, but teaches us patience, acceptance the importance of healthy diet.

P.S. I have saved a fortune on fast food restaurants! I grab a banana instead for .21 cents ok maybe two bananas.

KaitiUSA Enthusiast

Hang in there, being glutened is no fun but be optimistic...at least you are not feeling like this all the time you know. I know exactly how you feel, being glutened feels like crap. I hope you feel better and get over this reaction very soon.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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