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Pre-biopsy

EddieJP125

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EddieJP125 Explorer
EddieJP125
Posted

this friday is my biopsy...i have been on a gluten free diet for the past 1-2 weeks...i am also aware that gluten-free diet helps your body immediatly...should begin, like now till friday, eat some gluten foods, so that it would show up better for the biopsy?

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Guest jhmom
Guest jhmom
Posted

It is my understanding that you should remain on gluten until all testing is complete. When you were dx through blood work did your doctor not tell you this?

I think 2 weeks is enough time for some healing to begin in your villi so I don't know if the next couple of days would make a difference or not. In a lot of cases people are on gluten during testing and their biopsy and blood work still comes back negative.

I hope you are feeling better on the gluten-free diet!

khyricat Rookie
khyricat
Posted

I have to schedule my biopsy later this week (not sure when it will happen yet.) I was told to wait to start removing gluten until AFTER the biopsy.. if anything to OD on gluten containing products in the meanwhile to make sure the damage is clearly visible...

EddieJP125 Explorer
EddieJP125
Posted
  • Author
When you were dx through blood work did your doctor not tell you this?

no he didn't tell me anything, so i'm goin to call him today and see wat he says...maybe i will OD in gluten food, or drinks like...BEER!!!

oh i hope i can for the pre biopsy...hehehe

hapi2bgf Contributor
hapi2bgf
Posted

I would make sure to have a gluten fest prior to the biopsy. Load up on all the bread, pasta, beer, etc you can handle and good luck on your test. My last meal was a pizza buffet at a fantastic Mom & Pop pizza shop. Just make sure you have enough gluten in your system to really see what is going on. However, since you have been off gluten your test may still come back inconclusive.

EddieJP125 Explorer
EddieJP125
Posted
  • Author
I would make sure to have a gluten fest prior to the biopsy. Load up on all the bread, pasta, beer, etc you can handle and good luck on your test. My last meal was a pizza buffet at a fantastic Mom & Pop pizza shop. Just make sure you have enough gluten in your system to really see what is going on. However, since you have been off gluten your test may still come back inconclusive.

just found out from my dr that i shouldn't eat anything gluten...= (

now i'm even more depressed

i wish i read your reply first hapi2bgf, before i spoke to my dr.

khyricat Rookie
khyricat
Posted

that confuses me, I was told if I went gluten free and reduced gluten intake before the biopsy there was a large chance of a false negative as my body would start healing. She told me to actually gluten load, to both get it out of my system if I do have celiacs and to make the damage more obvious for the biopsy. Then I am to go gluten free and hope it heals, future biopsies will compare to this, so if I start gluten free first they won't know what it looked like at the worst.

Amie

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lovegrov Collaborator
lovegrov
Posted

I personally think you should be eating gluten up until the biopsy, but if you've been gluten-free for just a couple of weeks, any damage will not have healed completely.

richard

celiac3270 Collaborator
celiac3270
Posted

You are supposed to maintain a regular gluten-filled diet (or more gluten-filled if you wish)....

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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