Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor's Report And Biopsy


miles2go

Recommended Posts

miles2go Contributor

Well, it took a while getting the right referral, but I finally had my biopsy done on Wednesday. Out of three dermatologists in my area here in Northern/Down East Maine, I ended up at one who actually new what dh is and could do the testing. And after seeing my share of bad doctors, I really lucked out. I had an appointment for Tuesday, but ended up calling the office on Monday because I had no breakout. Figures!

They were really nice about it and said that the doctor would rather see me when I had a breakout and to give a call when I did and they would fit me in. Next day, of course, I broke out and they took me in 15 minutes after I called. This doctor was polite, respectful and just wonderful in every way. He said that dh isn't common on the face, but not unknown and he took the biopsy behind my ear. He said that he didn't want to do it on the blister, because it was too mucked up there, or something to that effect. :D

I get my results in two weeks and he mentioned that even if it comes back negative, it doesn't mean that I don't have dh. It didn't really hurt much at all, just a little achey the day after and the cost for me was about that of a teeth-cleaning. My insurance picks up the bill for the lab and will possibly do so for the office visit, as well. So, for those of you who have had horrible experiences with doctors, my heart goes out to you, but if you aren't completely fed up and squashed in spirit, keep looking. There are some good ones out there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miles2go Contributor

Sorry about the smirky face on the folder next to my last post.

Guess I know how to use all the emoticons now! :ph34r:

Margaret

Guest nini

glad you found a good Dr... you are right, many of us have horror stories of our experiences with the medical community... so welcome to the board

miles2go Contributor

Thanks, Nisla. After being diagnosed as allergic to wheat and staying gluten-free for over a year, then going back to ingesting some gluten for two weeks in order to be "presenting" for my biopsy, I'm as convinced as I need to be. I don't count dapsone as an option for me...and other than avoiding gluten and iodine, I was wondering if there is a naturopathic remedy for making dh go away more quickly?

TIA!

Margaret

Guest nini
Thanks, Nisla. After being diagnosed as allergic to wheat and staying gluten-free for over a year, then going back to ingesting some gluten for two weeks in order to be "presenting" for my biopsy, I'm as convinced as I need to be. I don't count dapsone as an option for me...and other than avoiding gluten and iodine, I was wondering if there is a naturopathic remedy for making dh go away more quickly?

TIA!

Margaret

I don't know of a specific naturopathic remedy, but if you have a good health food store near you that also sells supplements and homeopathic rememdies, you should be able to find something gluten-free to suit your needs... I use a homopathic line of products called Boiron for different things...

miles2go Contributor
I don't know of a specific naturopathic remedy, but if you have a good health food store near you that also sells supplements and homeopathic rememdies, you should be able to find something gluten-free to suit your needs... I use a homopathic line of products called Boiron for different things...

Egads, I'm going to be banned from the board for not knowing how to get my mongrel home computer to behave the way I want it to.

Sorry! This is the reply that I wanted to post under the quote!

Thanks again...we do have a good one here, I'm just not finding anything on the web except for very expensive Chinese medicine, and then selenium and vitamin E, which fail in double-blind tests. And I know that look when you ask about dh. :blink:

I'll give them a shot anyways.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.