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- cristiana replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Struggling to get into a good pattern
I struggled for a long time. My TTG levels took an age to come down. I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them. Removing dairy temporarily from my diet was hugely helpful. Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten... -
- kopiq replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3almost a year in recovery - so many questions about to give up
also my hands are always cold, freezing cold in the winter and even cold during hot summer days. its like i have a shield. i feel warm but its not penetrating inside, my teeth chatter as well and my left index finger goes dead white when im super hungry. all dr tests come back fine. im so hopeless. -
- kopiq replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
almost a year in recovery - so many questions about to give up
thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango... -
- Scott Adams replied to jage's topic in Super Sensitive People13
Trader Joe's strikes again
The Trader Joe's GF hamburger buns are the best!- bread
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I struggled for a long time. My TTG levels took an age to come down. I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them. Removing dairy temporarily from my diet was hugely helpful. Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten eaters. Shared grills must be thoroughly cleaned down, too. Our oven packed up a couple of years after I was diagnosed and after that time the top oven became my family's oven, I use the lower oven. Also our dishwasher - the old one left a residue, and sharing with gluten eaters I think this was an important factor in my slow recovery. When the dishwasher packed up I started hand washing the plates and making sure they were really rinsed well. When we got a new one we bought a Miele does the initial rinse with clean water, not yesterday's old water. I stopped eating out for a while - that's a biggie. In recent years, in the UK, thanks to Zoe's Law, caterers are having to really tighten up on catering for people with coeliac disease and allergies so I am now finding eating out much less risky. But I'd advise being very careful with restaurants where flour is thrown about and is airborne (such as pizzerias) or where harried chefs might cook pasta in glutenous water by mistake, as those are the places I've been glutened in the most. -
also my hands are always cold, freezing cold in the winter and even cold during hot summer days. its like i have a shield. i feel warm but its not penetrating inside, my teeth chatter as well and my left index finger goes dead white when im super hungry. all dr tests come back fine. im so hopeless.
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thank you, ive asked my dr to test for vitamin deficiency and shes only said vitamin d (very low 26) and b12, she says all other vitamins are not included in her blood tests only the major ones, C, D, E, B12 etc. Ive been following the aip diet now and im going to stay on it very strict to see how it goes. im eating tons of food, romaine salads, mango, peaches, pears, cucumber, celery, zuccnini, sweet potator, plantains, ground turkey and beef and chicken. i eat about 4 plate filling meals a day with two to three good size snacks a day including about 3 or 4 bananas. im still not absorbing nutrients, if i eat any sort of food with fat, I.e ground beef or fatty pork the taste of fat lingers in my mouth for 2-3 hours sometimes longer, if i bask in sun for vitamin d i feel great but then lethargic and feel strange for a day or two later, like im still absorbing it all in. even regular sweet foods like fruit the sweetness stays in mouth for hours. ive had blood work done for gall bladder, thryroid, pancreas, liver, kindey dr says they are all fine. i dont know what other tests i can do? ive attached two pictures of the rash that broke out on my legs, feet and small one near wrist bone bright red was before treatment, second scabby one is during treatment and healing. https://freeimage.host/i/FrI3KZb https://freeimage.host/i/FrI3Fwu
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Just ate some for lunch! A really superb alternative to gluten-free bread and burger buns that all have the taste and consistency of compacted sawdust. I bought two packs and now I'm down to one remaining muffin so need to get some more; the only thing is it's their own brand - they don't do mail or on line ordering and the nearest TJ's is in Charlottesville (a real nightmare to drive around) an hour away from me over the mountain. 😒
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