Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need A Better Doctor


khyricat

Recommended Posts

khyricat Rookie

I'd rather not drive as far as the doc listed on the SE MI Celiac support groups homepage- its at least an hours drive each way.. but I may do it anyway- I was just told that celiac only shows up in 2 blood tests - the other 2 don't need to be run because they only mean diagnosis a small part of the time, EVEN THOUGH They were what was done to diagnose my aunt AND I told the doctor that. I like the personality of this doc, and she came up with celiac, but she is telling me a) I don't have crohns because there was no damage in my large intestines a year ago, even with an elevated SED level (how they tell mom is out of remission) and my ongoign history of stomach issues they can't possibly be crohns (which isnt' limited to the large intestines, but also attacks the small intestines.. perosnaly I'm leaning towrds food allergy and I have an appointment with my GP about my long list of other symptoms that are non tummy related and to talk to her about switching docs, but I'd like a referral of a trustworthy doc who has dealt with this disease before!

Amie in MI

  • 7 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ideagirl Newbie
I'd like a referral of a trustworthy doc who has dealt with this disease before!

I don't know if you've checked here already, but there's an alternative medicine place at 2345 S. Huron Parkway in Ann Arbor, near where Huron Pkway crosses Washtenaw. It's easy to spot, because it's located in two huge purple Victorian houses. There are a lot of different practitioners there, all of them holistic/naturopathic, including some chiropractor/MD's, homeopathic doctor/MD's, nurse practitioners, etc. I've heard great things about the place, so it's probably worth checking if there's anyone there who might be well informed about celiac.

Since there are different practitioners, they all have different phone numbers. Here are a couple -- just call and ask if there's a general number, or a way to get information about all the practitioners who work there. (734) 945-4903 (734) 975-2444 734-973-3030

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.