Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need A Better Doctor


khyricat

Recommended Posts

khyricat Rookie

I'd rather not drive as far as the doc listed on the SE MI Celiac support groups homepage- its at least an hours drive each way.. but I may do it anyway- I was just told that celiac only shows up in 2 blood tests - the other 2 don't need to be run because they only mean diagnosis a small part of the time, EVEN THOUGH They were what was done to diagnose my aunt AND I told the doctor that. I like the personality of this doc, and she came up with celiac, but she is telling me a) I don't have crohns because there was no damage in my large intestines a year ago, even with an elevated SED level (how they tell mom is out of remission) and my ongoign history of stomach issues they can't possibly be crohns (which isnt' limited to the large intestines, but also attacks the small intestines.. perosnaly I'm leaning towrds food allergy and I have an appointment with my GP about my long list of other symptoms that are non tummy related and to talk to her about switching docs, but I'd like a referral of a trustworthy doc who has dealt with this disease before!

Amie in MI

  • 7 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ideagirl Newbie
I'd like a referral of a trustworthy doc who has dealt with this disease before!

I don't know if you've checked here already, but there's an alternative medicine place at 2345 S. Huron Parkway in Ann Arbor, near where Huron Pkway crosses Washtenaw. It's easy to spot, because it's located in two huge purple Victorian houses. There are a lot of different practitioners there, all of them holistic/naturopathic, including some chiropractor/MD's, homeopathic doctor/MD's, nurse practitioners, etc. I've heard great things about the place, so it's probably worth checking if there's anyone there who might be well informed about celiac.

Since there are different practitioners, they all have different phone numbers. Here are a couple -- just call and ask if there's a general number, or a way to get information about all the practitioners who work there. (734) 945-4903 (734) 975-2444 734-973-3030

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Additional Concerns
      3

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,490
    • Most Online (within 30 mins)
      7,748

    A.N.I.
    Newest Member
    A.N.I.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.