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fultsy

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fultsy Newbie
fultsy
Posted

My 2 1/2 year old son was just recently diagnosed with Celiacs by a blood test. We are still waiting to see the specialist so have not changed his diet. He tends to cry and move around alot at night usually it is around the same time every night. Has anyone ever noticed this? He ate a snack around 8pm that had gluten.

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shayesmom Rookie
shayesmom
Posted
My 2 1/2 year old son was just recently diagnosed with Celiacs by a blood test. We are still waiting to see the specialist so have not changed his diet. He tends to cry and move around alot at night usually it is around the same time every night. Has anyone ever noticed this? He ate a snack around 8pm that had gluten.

Yes, my dd had many sleep issues prior to us going gluten-free. Same thing holds true if she's exposed to any dairy or soy. I hope that you will be seeing the specialist very soon. My dd was negtive for Celiac but responded incredibly to the gluten/casein-free diet. Looking back now, I realize the discomfort she must have suffered being glutened constantly. It's depressing to even think about but at least we found out early and were able to implement the diet ASAP.

Would it be possible to call your specialist and ask if you can start the diet since you got a positive blood panel? It is very rare that those panels come up false positive and if you have to wait for months before a biopsy (to confirm what is already diagnosed)....well, it just seems a bit cruel on the part of the specialist to put this off. (No offense intended).

Or perhaps you could keep dinner and post-dinner snacks gluten-free at least so that your son may sleep better?

fultsy Newbie
fultsy
Posted
  • Author

Thank you for the information. We have a month yet to wait to go to the Dr. I hate the fact that it takes so long. I have cut back on what he gets but did not want to eliminate completely. I just noticed the other night we were at friends and he ate a late snack which was a cereal bar and trail mix. That night he cried and was so restless all night. We now know that cutting back is the best thing. We have been doctoring since December and it took my pushing to get the Pediatrician to check for celiacs. They just kept telling me he drank to much juice. I did not believe them and I am glad I insisted on more tests. Though I hate to put him through all of the tests at least now we know something. I just feel so bad for him.

Yes, my dd had many sleep issues prior to us going gluten-free. Same thing holds true if she's exposed to any dairy or soy. I hope that you will be seeing the specialist very soon. My dd was negtive for Celiac but responded incredibly to the gluten/casein-free diet. Looking back now, I realize the discomfort she must have suffered being glutened constantly. It's depressing to even think about but at least we found out early and were able to implement the diet ASAP.

Would it be possible to call your specialist and ask if you can start the diet since you got a positive blood panel? It is very rare that those panels come up false positive and if you have to wait for months before a biopsy (to confirm what is already diagnosed)....well, it just seems a bit cruel on the part of the specialist to put this off. (No offense intended).

Or perhaps you could keep dinner and post-dinner snacks gluten-free at least so that your son may sleep better?

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