Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Shingles (herpes Zoster)


hutmacar

Recommended Posts

hutmacar Newbie

Hi,

I'd like to know if someone has falsely been diagnosed shingles (herpes zoster) instead of celiac. Is such a missdiagnosis common?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

With doctors today, anything is possible. (Sorry, I have developed a deep mistrust of our medical system in general, so maybe I'm not a good one to reply here.)

I do believe, though, that shingles seems to occur more often in celiacs than in the generally healthy population, maybe because our immune systems are hyper, I don't know. On the other hand, most dermatologists wouldn't recognize Dermatitis Herpeteformis if it jumped uip and bit them on the a**--and, having had both, I can say that in my case, they DID look very similar (except shingles hurt like you wouldn't believe).

Are you having trouble getting a solid diagnosis of a rash?

julie5914 Contributor

It's probably common. I never had the rash (DH), but I can imagine that a regular doctor would assume shingles. A biopsy can be done to confirm it is DH. Valtrex can help if it is shingles. I actually just got my first herpes simplex (cold sore) outbreak in the last couple of weeks and was so embarassed to have to take Valtrex. That rash on my lips was horrible though and kept getting worse, but the valtrex stopped it in its tracks.

mamaw Community Regular

This is so interesting My uncle who is 93 &1/2 just told me he has shingles but he didn't know it because it doesn't bother him at all, no itch or pain..... and I agree with Fiddle-Faddle most docs know squat about any of this. I don't have or ever had dh but I now wonder about my uncle.Plus what makes me wonder more is his great grandson has autism & possibly his great granddaughter has autism.His son had all kinds of stomach problems but won't listen to anything I say............

Okay someone help me make a dx please!!!!!!

mamaw

Fiddle-Faddle Community Regular
Okay someone help me make a dx please!!!!!!

mamaw

(Mr. Rogers' voice): Can you say, "Gluten Intolerance?"

Guest Robbin
This is so interesting My uncle who is 93 &1/2 just told me he has shingles but he didn't know it because it doesn't bother him at all, no itch or pain..... and I agree with Fiddle-Faddle most docs know squat about any of this. I don't have or ever had dh but I now wonder about my uncle.Plus what makes me wonder more is his great grandson has autism & possibly his great granddaughter has autism.His son had all kinds of stomach problems but won't listen to anything I say............

Okay someone help me make a dx please!!!!!!

mamaw

From what I know about shimgles from people that have had it, is that it is painful and debilitating and if he had it, he WOULD definitely know it! As far as his son, some people have to really hit rock-bottom before they would even consider giving up gluten.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

    3. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

    4. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,055
    • Most Online (within 30 mins)
      7,748

    EllieBelly
    Newest Member
    EllieBelly
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      No I haven't had one since 2021. I rarely have more than 1 per week. 
    • trents
      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
    • Churro
      Everyday I eat a medium to large apple in the morning and a large banana at night. I eat a cup of oatmeal in the evening. The ezekiel wheat bread I eat has a good amount of fiber. I haven't dealt with constipation for at least a year. Most of the time my feces are soft. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.