Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Symptom?


jennyj

Recommended Posts

jennyj Collaborator

Today I was sitting at work talking to a couple of friends rubbing the left side of my neck because it hurt. One of my friends asked me what was wrong and I said it was a little sore and she said I had a large lump?. or swelling. She pointed to where it was and is was very tender. I'm going to call my doc tomorrow but was wondering if anyone knew what it could be. My throat isn't sore just the neck :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

goiter?

jennyj Collaborator

whats a goiter :blink:

Girl Ninja Newbie

Swelling of the thyroid gland. It usually has to do with iodine deficiency in my neck of the woods. I found this:

A goiter is an enlargement of the thyroid gland. It is not cancer.

Causes, incidence, and risk factors

There are different kinds of goiters. A simple goiter usually occurs when the thyroid gland is not able to produce enough thyroid hormone to meet the body's needs. The thyroid gland makes up for this lack by enlarging, which usually overcomes mild deficiencies of thyroid hormone.

A simple goiter may be classified as either an endemic (colloid) goiter or a sporadic (nontoxic) goiter.

Endemic goiters occur within groups of people living in geographical areas with iodine-depleted soil, usually regions away from the sea coast. People in these communities might not get enough iodine in their diet (iodine is vital to the formation of thyroid hormone). The modern use of iodized table salt in the U.S. prevents this deficiency. However, inadequate iodine is still common in central Asia and central Africa.

In most cases of sporadic goiter the cause is unknown. Occasionally, certain medications such as lithium or aminoglutethimide can cause a nontoxic goiter.

Hereditary factors may cause goiters. Risk factors for the development of a goiter include female sex, age over 40 years, inadequate dietary intake of iodine, residence in an endemic area, and a family history of goiter.

Guest BERNESES

Could also be a lymph node. I woke up two weeks ago with a huge lump in my jaw and 2 smaller ones. The lump was an infected salivary gland and the smaller ones were lymph nodes. You have lymph nodes in a lot more places than i ever knew!

Let us know what happens.

eKatherine Apprentice
Could also be a lymph node. I woke up two weeks ago with a huge lump in my jaw and 2 smaller ones. The lump was an infected salivary gland and the smaller ones were lymph nodes. You have lymph nodes in a lot more places than i ever knew!

Let us know what happens.

I used to get swollen lymph glands when I lived a more physically stressful life. One particularly painful one was treated with and responded to antibiotics.

dionnek Enthusiast

I am having the same pain (been having it for about a month since I've gone gluten-free but never before going gluten-free), however, you can't see or feel any lump in mine. It's just a pain that comes and goes in the left side of my neck, right above the collar bone, and it is definitley not a muscle or anything like that. I'm seeing a dr. today - will let you know what he says.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jennyj Collaborator

I went to the doctor today and he took several pints ( ok vials but it felt like more)

of blood. He said it could be an infection of the gland, mono, or even mumps, but he really doesn't think it could be mumps. He should know something Wed. He put me on an antibiotic and said if I wasn't better Wed. He may want to do a biopsy.

BRUMI1968 Collaborator
I went to the doctor today and he took several pints ( ok vials but it felt like more)

of blood. He said it could be an infection of the gland, mono, or even mumps, but he really doesn't think it could be mumps. He should know something Wed. He put me on an antibiotic and said if I wasn't better Wed. He may want to do a biopsy.

Not to dis your doc, but what is up with docs giving antibiotics B4 they know what's wrong with people. That's so annoying, especially when folks have sensitive guts and those antibiotics are going to fry all your good bacteria. Arg.....

It is a bizarre way to conduct medicine - give the pills first, if they work, that's what it was. What if time cured it and the pills were just wasted.

Sorry. I shouldn't rant about this on your post. I hope that your pain/lump gets better. I know it's always disturbing to find lumps and bumps that don't belong.

Guest BERNESES

Jenny- Hope the antibiotic does the trick and you don't need a biopsy. Hopefully it's "just" an infected gland.

I am having the same pain (been having it for about a month since I've gone gluten-free but never before going gluten-free), however, you can't see or feel any lump in mine. It's just a pain that comes and goes in the left side of my neck, right above the collar bone, and it is definitley not a muscle or anything like that. I'm seeing a dr. today - will let you know what he says.

Dionne K- Do you have pain like that any place else? It almost sounds like one of the trigger points for pain in fibromyalgia. Either way, you should get it checked out.

Guest nini

lumps and bumps can be any number of things, usually benign. As a massage therapist, I'd be more inclined to think it was a knot in a muscle or a swollen lymph node (that just needs to be detoxed)... does rubbing it aggravate it or make it feel better? Have you tried putting cold or heat on it to see if that makes a difference? I also think it's peculiar for the Dr. to give antibiotics "just in case" it's something... "first do no harm" and by giving antibiotics if they are not needed is possibly doing harm...

Guest BERNESES

I know- my doctor is VERY hesitant to give antibiotics. Which is good considering I just did my first round since developing active Celiac symptoms and it did a number on me. maybe it's because it's 4th of July weekend and no one will be seen again until next Wed.??? just a thought.

jennyj Collaborator

Being new to all this I didn't think about antibiotics having an effect on celiac. Thanks for the info. I haven't tried ice or heat on it yet. He did ask if I would be at the store Saturday or Monday but then said he would let me know Wed. I really appreciate this site because it gives me new ways to look at things and people who seem to care even though they do not know me. It's so nice to be able to say things and have others know where you are coming from. Thanks.

jennyj Collaborator

Called the doc today. White blood count was normal, hemoglobin was 14.5 (YEAH it's never been that great, guess iron infusion was successful), the mumps test isn't back but they really doubt that is the problem. I am supposed to call back Wed. to see if the lump is better after 7 days on antibiotics(not yet) and he may want to do a biopsy.

dionnek Enthusiast
Jenny- Hope the antibiotic does the trick and you don't need a biopsy. Hopefully it's "just" an infected gland.

Dionne K- Do you have pain like that any place else? It almost sounds like one of the trigger points for pain in fibromyalgia. Either way, you should get it checked out.

this is the only place i have this pain (left side of neck only, right above collar bone. The dr. didn't know what it was when I went on Friday - said could possibly be a swollen lymph node and he could put me on antibiotics if I wanted (which I didn't), so he said to wait 2 more weeks and if it doesn't go away then we should do xray or MRI. I rub it, but it doesn't help the pain - probably makes it worse. I'll try a heating pad - that might work when it's hurting. He said my thyroid is higher up, so it shouldn't be that. Very wierd!

scrunt Newbie
Called the doc today. White blood count was normal, hemoglobin was 14.5 (YEAH it's never been that great, guess iron infusion was successful), the mumps test isn't back but they really doubt that is the problem. I am supposed to call back Wed. to see if the lump is better after 7 days on antibiotics(not yet) and he may want to do a biopsy.

I've had a bunch of problems with my neck/ throat area and it has been a combination of:

- swollen lymph nodes (either from infection, or body not flushing stuff out enough, so maybe a kidney infection as well)

- saliva duct stones (if you have horribly bad breath and feel like something is stuck in there)

- a goiter (which can be from too little or too much iodine)

- candida overgrowth (too much sugar does strange things)

At one point I had issues with swallowing, and sore neck, and swollen cheeks. It was a combination, we think of saliva duct stones and a too-much iodine goiter. Supposedly Celiac's metabolize iodine differently than others do, and need to go on iodine-free salt (ie kosher or pickling salt) in order to get that under control.

So, keep on it with your doctor. Good to hear he didn't give you antibiotics first off.

dionnek Enthusiast

What kind of dr did you go to for all this, and what kind of tests did they do? The dr. that i just went to was an allergist (I wanted to get other food allergies tested), so he didn't know very much about it. He said my endo probably wouldn't know since it seemed to low for my thyroid, but he didn't really say who I should see.....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.