Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing Daughter For Celiac

Nantzie

Recommended Posts

Nantzie Collaborator
Nantzie
Posted

I'm surprisingly upset about this, considering what a God-send finding out about celiac has been for me personally.

My daughter just turned 4, so she has been potty trained for a while now. I'm not even involved in the process anymore, if you know what I mean. The whole time I was involved in the process, everything looked normal.

A few weeks ago they called me from preschool because she had diarrhea several times that day, and didn't make it to the potty in time one of those times. I asked the teachers as much as I could about it, and it raised my suspicions a little. But she had been through a period where she was getting one cold after another, and then really bad allergies. And then when I took her to the doctor about her allergies, the doctor said that she's definitely allergic to something because she's got such dark circles under her eyes and said that they even call them "allergic shiners". Crud!

I had told her that mommy needs to see your poop, which she would forget about and flush and THEN tell me. After a few days, I did end up seeing it and it's pale (kinda the color of a cardboard box, but a little yellower), but it wasn't floating. I knew right then that I needed to arrange to have her tested, but I still kept thinking that maybe it was from being sick.

Well, this afternoon, I saw it again, and it's the same color, this time floating, and foamy. Crud!

I ordered the Enterolab $99 gluten test, rather than the whole panel. I can't afford the whole panel right now.

I'm going to make an appt with her doctor to let her know what's going on, and let her know about Enterolab and the test I ordered. I would wait and jump through the hoops, but I'm not up for a fight with her doctor if she still has old information on celiac. I just want her to be healthy.

I know that both my kids are susceptible to gluten problems since they both have two copies of the genes, but I was praying that they wouldn't have any problems until they were at least a few years older so that they could understand a little better.

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


alexisb Rookie
alexisb
Posted

It sounds like you're on the right track. I'm very sorry that this has surfaced, but you are so blessed to be aware of celiac as you're parenting. Good luck and let us know what happens.

Guest nini
Guest nini
Posted

four is not too young to learn about the diet and get the hang of it. It's actually better to start younger in my opinion. My daughter was 3 when we went gluten-free, and she is now 6 and has a very good handle on the diet and knows to ask before eating ANYTHING...

it's not the end of the world if your children have to be gluten free, in fact they will end up eating healthier than the rest of their peers... I am constantly getting feedback about how healthy my child eats and how HER choices are always healthier choices...

TCA Contributor
TCA
Posted

I think it's easier to start when they are young, that way they don't feel so much like they're missing out on things. Just be thankful you found it and hopefully can prevent other health issues. good luck!!

Ursa Major Collaborator
Ursa Major
Posted

Nancy, since your kids have two celiac genes, it's safe to say that your daughter has now developed celiac disease. As you're waiting for your enterolab kit, you might as well put her on the gluten-free diet, to make her feel better as soon as possible. You don't have to eat gluten for the enterolab tests!

And why not put the whole family on a gluten-free diet to make life easier for you, and prevent your son from developing full-blown celiac disease? That's what I would do, anyway. And if they have two copies of the genes, your husband must have given them one, and would probably benefit from being gluten-free as well.

Guest cassidy
Guest cassidy
Posted

I'm sorry to hear you are going through that.

At least you understand everything and you know about the diet since you are dealing with it. That will make it easier for her, but it still is not good news.

Nantzie Collaborator
Nantzie
Posted
  • Author

Yea, you all are right. My daughter is such a picky eater that I was just crossing my fingers that it wouldn't surface for a couple more years. But then there was a post a week or so ago where one of our members thought her young daughter who would only eat veggies (I think that was it) might have a gluten problem. We all gave her some just regular mommy advice on that type of stuff, and then when she put her daughter gluten-free, she started actually wanting to eat other things. I hope that's true for my daughter. I had never thought about that being a possibility.

And I should put everyone on a gluten-free diet. Definitely my kids. My husband was such a horrible &$% about celiac at first, called me a hypochondriac, told me that I wanted to be sick so I could get attention, blah, blah, blah, that I haven't even told him I got the kids genes tested. Especially since his family was just as bad, if not worse, and that means they carry it. I REALLY don't want to have THAT conversation. I have to say that my husband and his family have completely turned around in regard to ME having celiac. They're all really great now. BUT, if I was to suggest that they may need to be tested for it, it would get really ugly again. But I'll do it. I just have to get the guts and find the appropriate time.

Hopefully my husband will be willing to be tested at least.

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gentleheart Enthusiast
Gentleheart
Posted
Nancy, since your kids have two celiac genes, it's safe to say that your daughter has now developed celiac disease. As you're waiting for your enterolab kit, you might as well put her on the gluten-free diet, to make her feel better as soon as possible. You don't have to eat gluten for the enterolab tests!

And why not put the whole family on a gluten-free diet to make life easier for you, and prevent your son from developing full-blown celiac disease? That's what I would do, anyway. And if they have two copies of the genes, your husband must have given them one, and would probably benefit from being gluten-free as well.

Hi Ursula,

May I interject a question because of what you said? If a person has a celiac gene And a gluten intolerant gene and Enterolab also says they have active antibodies and mild malabsorption, is it just assumed that they have actual celiac? At that point is a biopsy the only way to know or do you pretty much know from that kind of stool result? Thanks!

Ursa Major Collaborator
Ursa Major
Posted
Hi Ursula,

May I interject a question because of what you said? If a person has a celiac gene And a gluten intolerant gene and Enterolab also says they have active antibodies and mild malabsorption, is it just assumed that they have actual celiac? At that point is a biopsy the only way to know or do you pretty much know from that kind of stool result? Thanks!

Well, Enterolab can't diagnose you with celiac disease, but with gluten intolerance. Since the treatment is the same (and if you're gluten intolerant you'll likely develop active celiac disease sooner or later) it doesn't really matter. There are some experts who would like the distinction in diagnosis abolished altogether.

And once you're diagnosed by Enterolab, a positive response to the gluten-free diet is all that is needed to confirm a diagnosis, a biopsy wouldn't be needed. Biopsies are an unreliable method of diagnosing celiac disease anyway. They'll only catch it if extensive damage to the villi is done, but not if there is only mild damage.

Personally I believe that it is preferable to PREVENT that extensive damage with a gluten-free diet, before it gets so bad that you're desperately ill.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.