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Can Anybody Help Me?

Gentleheart

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Gentleheart Enthusiast
Gentleheart
Posted

Hi,

I'm brand new today, both with trying to talk on a forum and being diagnosed with celiac. I don't have a clue how to do this. I'm not even sure if this will post. I tried to send one before and it didn't work. Can anyone walk me through this? I'd sure appreciate it.

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imsohungry Collaborator
imsohungry
Posted
Hi,

I'm brand new today, both with trying to talk on a forum and being diagnosed with celiac. I don't have a clue how to do this. I'm not even sure if this will post. I tried to send one before and it didn't work. Can anyone walk me through this? I'd sure appreciate it.

Hi there and welcome! Well, congrats, your post posted just fine! B) There is a lot of wonderful info. to be found on this site and great emotional and informative support here on the forums. :)

It will take a while to learn the "rules" you must follow with this diagnosis, but once you get the hang of it, it will seem natural to buy and eat gluten free foods.

Again, Welcome to the site! :) -Julie

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Hi,

I'm brand new today, both with trying to talk on a forum and being diagnosed with celiac. I don't have a clue how to do this. I'm not even sure if this will post. I tried to send one before and it didn't work. Can anyone walk me through this? I'd sure appreciate it.

Rachel--24 Collaborator
Rachel--24
Posted

Blanchemae,

To reply to a post using quotes click on the "reply button under the post you wish to respond to. This is what you did with your last post...you would then type your response under the quoted text. If you don't want any quotes in your reply scroll to the bottom of all the posts and click add reply. You can then type your response without having any quotes in your post.

Hope this makes sense. Anymore questions? Ask away.

Welcome to the board. :)

Oh...when you post a new topic choose the forum that the topic is best suited for. I just moved your other topic question to "post diagnosis and recovery"....in case you are wondering what happened. :)

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Blanchemae,

To reply to a post using quotes click on the "reply button under the post you wish to respond to. This is what you did with your last post...you would then type your response under the quoted text. If you don't want any quotes in your reply scroll to the bottom of all the posts and click add reply. You can then type your response without having any quotes in your post.

Hope this makes sense. Anymore questions? Ask away.

Welcome to the board. :)

Oh...when you post a new topic choose the forum that the topic is best suited for. I just moved your other topic question to "post diagnosis and recovery"....in case you are wondering what happened. :)

Thanks so much Rachel! Feel free to put me in the right place whenever necessary! :D

  • 2 weeks later...
Camille'sBigSister Newbie
Camille'sBigSister
Posted
Blanchemae,

To reply to a post using quotes click on the "reply button under the post you wish to respond to. This is what you did with your last post...you would then type your response under the quoted text. If you don't want any quotes in your reply scroll to the bottom of all the posts and click add reply. You can then type your response without having any quotes in your post.

Hope this makes sense. Anymore questions? Ask away.

Welcome to the board. :)

Oh...when you post a new topic choose the forum that the topic is best suited for. I just moved your other topic question to "post diagnosis and recovery"....in case you are wondering what happened. :)

Rachel: Thanks! Your answer to Blanchemae also solved the problem for me. Now I know how to quote! YEA!!! :D:D:D

Now, suppose I wanted to quote and answer just one paragraph in a long post. How do I do that? And how would I quote and answer paragraph 1, then skip down and quote and answer paragraph 5?

Am I making sense? :huh:

Cissie

jerseyangel Proficient
jerseyangel
Posted

Hi Cissie--

To quote a portion of a post, hit "reply" in the lower right corner of the post you wish to reply to. The entire post will appear in the box--just delete all text you don't want in the reply, then reply underneath as usual. :)

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Camille'sBigSister Newbie
Camille'sBigSister
Posted

Hi, Patti! Thanks for the info. :) It sounds simple enough to do. I'll try it when I have time.

Cissie

jerseyangel Proficient
jerseyangel
Posted
Hi, Patti! Thanks for the info. :) It sounds simple enough to do. I'll try it when I have time.

Cissie

It really is simple--once you've been on here a little while it will become second nature :D

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
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    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

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      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
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      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
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