Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors Appt


Linda56

Recommended Posts

Linda56 Apprentice

I have an appt with a doctor tomorrow. He is just a GP. Not the same doctor I have seen before. When I called the office I specifically told the receptionist that I only am interested in if the doctor will let me have a certain blood test. She ask me what the test was for. I told her celiac disease. She said she had never heard of it and was sure if Quest diagnositcs could do it. I told her oh I imagine Quest can do this I would be very surprised if they didn't. So she said all I could do is come in tell the doctor what my symptoms are and let him decide. Well I figured that is the way it would be and that the receptionist can't make any decisions. Just this way I am hoping she at least mentioned it to the doctor so he might have it in his mind. So I want to know what I am requesting when I go to see him. I am aware from some posts that have been written that a blood test isn't the best test neccessarily. But could some one tell me exactly what I can request from the doctor that is the most reliable on blood test to check for Celiac disease. I know I had a IGG IGA and IGM a couple years ago and I think it was the IGA but it might have been the IGG that was positive. But is there some thing more than just those. Which ever one I had positive for my then doctor said it wasn't celiac disease. Thanks for any help you can give.

Linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikki-uk Enthusiast

This is the full panel for a coeliac screen:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

You must still be eating gluten to get a positive result,however,a negative blood test does not mean gluten doesn't bother you!

There are people on this board who have had a negative blood test,but have decided to go G.F because they feel much better.

Good luck!! :)

Linda56 Apprentice

Thank you very much.

Linda

Linda56 Apprentice

Well I saw the doctor yesterday. And told her what I wanted. I ended up seeing an associate, which is ok.

She won't give me the blood test for Celiac D. She will of course send me to have blood work for all the things she wants. I just had a bunch of blood work for checking all the regular stuff by another doctor. So I know my insurance isn't going to pay for more of the same blood work. She said they could do a stool check and I ask for what she said to check for cancer and parasites. And gave me a prescription for antibiotics as she said some times an infection can cause different symptoms. I just don't get why they will do all this other stuff but why not just add on to it what I want. She ask the other doctor to come and tell me what he thinks and they agreed blood work was not reliable. So that was the extent of the appt. I don't think I will be going back. I think they just don't want to do what patients want. I agree me being new to her that she wants to give me a kind of physical. But I am tired of the doctors always wanting it thier way. Thanks again for previous posts.

Linda

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.