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Upper Middle Pain.. Gluten Contamination What To Do?

kibou

By kibou
in Coping with Celiac Disease

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kibou Rookie
kibou
Posted

After a stool sample saying i was gluten senstive i stopped eating gluten and though it took awhile i was relieved of many symptoms. I still had cramps here and there that were severe but they didn't seem to last as long ect.

well after some events and learning i was no fun all i did was stay indoors and my friends wanting to be able to have funa nd go to the olive garden without feeling bad looking at me.. i decided to be brave and even though i knew the red lobster was a no no and certainly not gluten friendly.. i thought i don't care! i'm gonna have fun damnit! how much gluten could be in steamed crab legs anyway.

I shared an order or stuffed mushrooms. I reread it over and over and knew it was risky and made sure my friend ate it first and asked if it tasted bready (broiled mushrooms stuffed with cheese lobster and crab..i thot not much room for them to add anything else)

well after the appetisers of which i ate maybe 5 tiny mushrooms i knew something tasted.. i dunno good? lol and even tho i had gotten a fruity drink from there..well the room got wavey like iw as drunk which scared me a little... one sip of a watered down fruit pina coloda thing couldnt have gotten me drunk right? but when the crab came i got over myself and was determined to have a good time and felt better.

well that was several days ago.. maybe 4.. and since then it has felt like there is a ball glued inside my chest.. middle upper .. right between my loer ribs.. it hurts is a weird way. i lept up in panic all night tonight.. starting to lose it /sigh..

I figured maybe i was intolerant and not have celiac (yeah i know no more tests please rather just live without).. but dang it hurts.. and oh i fergot to mention i consequently looked up the recipe for lobster stuffed mushrooms and they all have oyster crackers)

I figure well even if i screw up i'll have pain but it will pass through my system.. but several days later it still feels so high in my tummy for such a tiny amount of gluten...

what do you do if you ingest gluten? how do you get the pain to stop or pass through.. heck even my heart/chest is starting to hurt.. do i have to start all over again and it will be MONTHS before i start to feel better again? .cry

i'm tired of being so sick and everyone being sick of me.. ive lost my husband over this because i cant go out and have fun and he says this is not how he wants to spend his life while he's young. im sick of this!

ok small rant

anyway.. is this common.. usually i get severe cramps and have to run to the bathroom (still do even tho gluten free just cut down by 90%.. but this mid upper pain is driving me nuts.. its like eating its way to my lower sternum :(

i dont have a car or dr as i just moved here.. and im sure they'd make me swallow a camera anyway.. not something m interested in doing just to tell me yah its inflamed.. im not dumb i can feel theres something wrong

what do you guys do for this pain how long till it will go away? it has taken me forever nearly 7 years to feel this well .. i don't want to start over

btw if you might know why i still get cramps now and then let me know too.. i keep a pretty good diary and i know my body hates any type of oil..but sometimes it does it just randomly.. pretty soon ill have nothing left to eat..

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eKatherine Apprentice
eKatherine
Posted

Just a suggestion: having a person without gluten intolerance taste something is not a test of whether it is gluten-free. Stuffed mushrooms you would order in a restaurant always contain a substantial amount of bread crumbs and/or flour.

If you are going to eat out, you need to go prepared to only eat the things you know are safe, not merely avoiding the things you are positive are unsafe. If you're not sure something is gluten-free, you can assume it is not.

Soo B Newbie
Soo B
Posted

I hope you come around and start feeling better soon. On a semi-related note:

ive lost my husband over this because i cant go out and have fun and he says this is not how he wants to spend his life while he's young. im sick of this!

If you litreally lost your husband over you needing to go gluten-free, you lost nothing but dead weight. You deserve better than that.

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      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

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      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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