Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

? About Going gluten-free


misgiss

Recommended Posts

misgiss Apprentice

We just went gluten-free with 3 y/o ds. This could just be a coincidence but a day or two after we started he had a fever for a couple days and selpt A LOT. It's happend in the past where he'll get a fever, no other symptoms and then after a few days he'll be back to normal. His eczema had a big flair but dh and I thought it might be due to the sudden rise in humidity. Well, after the fever was gone his eczema was gone too. Could this have anything to do with starting gluten-free diet?

And one more question: I know everyone is different but how long until we know if it's working/not working? We have seen slight improvement in his D. Not just brown water anymore, but clear water with other "stuff" in it. Still very stinky though.

TIA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

Tia:

The fever would lead me to believe that it might be a touch of the flu. As far as finally feeling better after going gluten-free it has taken me about 3 years. At least I have never heard of a fever/celiac connection but as we all know it can manifiest in many different ways.

Has he been diagnosed with celiac? If he has it's not a question of knowing if it will work or not, he will have to be gluten-free forever. Since he is young I would think that much of the damage can be reversed. Did he have a blood test or the biopsy?

nettiebeads Apprentice
We just went gluten-free with 3 y/o ds. This could just be a coincidence but a day or two after we started he had a fever for a couple days and selpt A LOT. It's happend in the past where he'll get a fever, no other symptoms and then after a few days he'll be back to normal. His eczema had a big flair but dh and I thought it might be due to the sudden rise in humidity. Well, after the fever was gone his eczema was gone too. Could this have anything to do with starting gluten-free diet?

And one more question: I know everyone is different but how long until we know if it's working/not working? We have seen slight improvement in his D. Not just brown water anymore, but clear water with other "stuff" in it. Still very stinky though.

TIA

Well, the fact that you notice a difference in his D would seem to indicate it's working. I would feel slightly feverish when glutened - it probably throws the immune system out of whack. Just keep up the gluten-free diet - change is based on many things - how sick, how long sick, degree of damage, and how totally gluten-free the person really is. Watch out for hidden gluten in meds and toiletries and always beware of cross-contamination.

Hope you guy is well soon!

Annette

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,213
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.