Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arg! First Definite Glutening Since Dx


BRUMI1968

Recommended Posts

BRUMI1968 Collaborator

I'm 99% sure I got glutened late today. Funny thing is, the only reason I can come up with is that I ate some sliced avocado from a friend's salad from her home. I didn't even think of cc at her house. Otherwise, I've only eaten safe things today (beet greens, poached egg, sunflower seeds...then chicken meat [which is gluten-free and which I've been eating for a week at least] with avocado, mustard [gluten-free], raw sauerkraut [gluten-free], and lettuce.

AHHHHH.

Actually, my stomach is mildly bugged - but I took a three hour nap with horrible nightmares, and I have at least two monsterous canker sores.

Well, not too bad for two and a half months off the evil gluten. Still...I wish I could eat something yummy right now, instead of being pretty sure I shouldn't put anything in this delicate stomach.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Sorry you got glutened. It's unavoidable that it happens sooner or later. I hope you will feel better soon.

rinne Apprentice

I found it to be a bit of a shock, it really hurt when I got glutened after being gluten free for only two and a half weeks. I hope you feel better soon.

BRUMI1968 Collaborator

Oddly, it turned out to the be Amazake Rice/Almond shake that got me. I'm not sure it was gluten, though. They don't make anything with gluten in it - so I don't know how that would be it. But the next day I had ONE SIP of another one I had - and right away was covered in canker sores. I felt like I had been MSG'd. Thankfully, just one sip and I felt better w/i a half hour or so.

Oh well. I won't be drinking those anymore. I'm waiting for my food panel to come back, so maybe it was something else.

bluejeangirl Contributor
Oddly, it turned out to the be Amazake Rice/Almond shake that got me. I'm not sure it was gluten, though. They don't make anything with gluten in it - so I don't know how that would be it. But the next day I had ONE SIP of another one I had - and right away was covered in canker sores. I felt like I had been MSG'd. Thankfully, just one sip and I felt better w/i a half hour or so.

Oh well. I won't be drinking those anymore. I'm waiting for my food panel to come back, so maybe it was something else.

bully, what is amazake rice/almond shake and what is in it? I was going to suggest it was maybe the sourkraut. If you have MSG reactions chances are you'll react to aged or fermented foods. It usually goes hand in hand.

gail

BRUMI1968 Collaborator

Interesting. I've been ejoying the sauerkraut for a few days w/o reaction. I do CRAVE it, which is odd.

The rice/almond shake has: brown rice, almonds, almond flavor, and brown rice syrup - but it is claimed to be gluten-free, and I've not had a problem with it before. They also make one called Tiger Chai, which I do have problems with, though more from the tea/spices on my empty stomach. This time it was more canker sores and amazing yuckyness.

I'm not sure. But since I wasn't eating any grains at all and the rice shake is based on grains, it was really just a treat anyway.

I'll watch the sauerkraut - do a test. All it has in it is cabbage and sea salt, but obviously it has been fermented. I'll eat a bunch of it for dinner and see what happens. Hopefully nothing!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.