Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Very New To This


twinmami

Recommended Posts

twinmami Newbie

I am new to this site and to the whole idea of living gluten free. i've had exzema for many years and it recently got really bad. I've done alot of research and have been recommended to follow a gluten free diet which i have no idea what that means. Is gluten an actual ingredient that I can find on food labels?

I was also told to avoid dairy,wheat,oats rye and barley. My typical breakfast was a bowl of cheerios with soya milk and then for lunch a sandwich on whole wheat bread and whole wheat rice for dinner.

Now I'm just totally confused about what I can eat to help my condition. I'm hispanic and love to eat "arepas" which made with white corn meal flour. is there any way of knowing if this is gluten free?

Can anyone give me some basic guidelines to get me started.

Thanks so Much

I was also told to eat naturally fermented foods which I have no idea what these are?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Hi Twinmami (I guess you must have twins :) ), and welcome to this board.

Well, gluten is the protein in wheat, rye, barley and triticale (which is a hybrid of wheat and rye), and oats are bad, because they are usually contaminated in the factory.

Avoiding dairy for a while is a good idea, because right now your intestines probably can't digest dairy, until they heal (unless you tested intolerant to casein, then you can't ever have dairy again).

What you were eating for dinner was probably brown rice, which has no wheat and is fine, you can keep having that.

Your arepas are probably fine, too. Corn flour has no gluten. If you only use corn flour for them (and I believe that is the only flour ingredient), then they are no problem.

You will have to give up your sandwich on whole wheat flour for lunch. Eat corn tortillas (isn't that what arepas are?) with beans or meat, and vegetables instead.

Here is a link to a website that belongs to Nini, a member here. She has put together a lot of information that would be very helpful to you. She calls it her 'Newbie survival kit'. When you get to the website, scroll down to the bottom and click on 'newbie survival kit zip file'. If you have problems with zip files, go to the other link, where you'll find the single files to download. Here's the link: Open Original Shared Link

I don't know why you were told to eat fermented foods, either. Maybe somebody else knows.

rinne Apprentice

Welcome Twinmami, Ursula has set you on a good path and this is a great site with lots of really helpful advice.

I'm still in the being overwhelmed stage myself but after being largely gluten free (a couple of accidental glutenings) I am feeling so much better I can't believe I felt as badly as I did for as long as I did.

BRUMI1968 Collaborator

The suggestion to eat fermented foods probably comes from the idea that fermented foods aid in digestion, especially proteins and fats. AND it is especially important for the absorption of B12, which many folks with celiac have a deficiency in. Most cultures have some form of fermented foods, though I'm having trouble thinking of hispanic foods that fit this bill. Yoghurt maybe? There are some drinks based on fermented plants, pulque and tepache, fermented beverages made from the maguey plant and pineapple, respectively -- but those are alcohol and have their own set of problems.

If you want the healthiest kind, they need to be raw veggies; or if you can eat dairy, then kefir is good. It is like yoghurt, only liquid.

I eat raw sauerkraut. I thought it would be gross - but it is good. It is just chopped cabbage that is fermented. In this case, it is raw. It does seem to be helping me - and it seems to be making my skin really nice, which is an added bonus.

I'd focus mostly on the getting rid of the gluten, then worry about the smaller things. If your problem is celiac, you should notice a change in your skin problems pretty quickly I would think. At least I did, though my problem was not very bad.

Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,153
    • Most Online (within 30 mins)
      7,748

    Mmoc
    Newest Member
    Mmoc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.