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My Sons Doc Visit Yesterday

chgomom

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chgomom Enthusiast
chgomom
Posted

Yeah....went to his GP and the GP said you know with your history and then

with him never having had a "hard stool" the couple of times he's gotten violently ill eating pasta, the moodiness, the belly, only having grown half an inch to maybe a full inch in a year....I want him right out

at a gastro asap before I order anything else, because while it may not be celiac (although its likely he said) he could have a really bad lactose allergy that has just not made him "sickly"

So the doc did'nt want to put him throuh anything else, because the GI doc would run what ver else he wants and then he wants to talk to him about diet and such. He said for me not to change his diet though at this stage although, regardless of blood test and such being positive or not, it could skew some of the other things the GI doc might want to run.

I don't know, if they suspect celiac, and the blood is negative, or if its positive...I will not consent to a biopsy at this age without trying the diet first. Am I offbase here? I think its silly at this stage, and age to put him out for something potentially dangerous when we could try diet for a couple of months and see if there is improvement.

Can any moms and dads chime in?

He had a celiac panel and sed rate done yesterday but the results are not back....

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celiacgirls Apprentice
celiacgirls
Posted

My children have responded to the diet. One of them has had negative bloodwork in the past and one has never done the blood tests. We are not going to do the biopsy because, like you said, why put them through that when we know what to do. In our case, a negative biopsy wouldn't change anything.

penguin Community Regular
penguin
Posted

Your doctor was right in saying not to put him on the diet yet if you think you may do a biopsy. The thing about doing a biopsy after being gluten-free for any length of time is that it skews the results. If the damage wasn't bad yet or just patchy, and the fact that he is a young child, the damage would heal fairly quickly and they might not catch it on the biopsy. To have the biopsy done after being on the diet, you would have to put him back on a full gluten diet for 3 months to have a chance at having accurate results.

Now, if his blood results turn up positive, IMO there is no reason to do a biopsy and you might think about going straight to the diet.

I would at least keep him on gluten until his bloods come back and you see the gastro doc. Good luck!

chrissy Collaborator
chrissy
Posted

sounds like you have a GP that is on top of things!

Sarah8793 Enthusiast
Sarah8793
Posted
Yeah....went to his GP and the GP said you know with your history and then

with him never having had a "hard stool" the couple of times he's gotten violently ill eating pasta, the moodiness, the belly, only having grown half an inch to maybe a full inch in a year....I want him right out

at a gastro asap before I order anything else, because while it may not be celiac (although its likely he said) he could have a really bad lactose allergy that has just not made him "sickly"

So the doc did'nt want to put him throuh anything else, because the GI doc would run what ver else he wants and then he wants to talk to him about diet and such. He said for me not to change his diet though at this stage although, regardless of blood test and such being positive or not, it could skew some of the other things the GI doc might want to run.

I don't know, if they suspect celiac, and the blood is negative, or if its positive...I will not consent to a biopsy at this age without trying the diet first. Am I offbase here? I think its silly at this stage, and age to put him out for something potentially dangerous when we could try diet for a couple of months and see if there is improvement.

Can any moms and dads chime in?

He had a celiac panel and sed rate done yesterday but the results are not back....

I agree with you. I am getting ready to have my son tested and no matter what he will not be biopsied. When they are adults fine. I guess there might be some cases where it would be a good idea to biopsy on a child, but you have to weigh it. JMHO

Sarah

jadobson Newbie
jadobson
Posted

I just wanted to put my 2 cents in. I agree wait until the lab results come back then go gluten free. We too did not bx and I have never regreted it. The doctors agreed after seeing him grow and gain weight that he was celiac. Mind you it took a few years, but they all agree and my littlest child is now doing the same thing at 5 yrs. so we are doing the gluten free diet without even bothering with a GI. Just my 2 cents.

Ursa Major Collaborator
Ursa Major
Posted

In my opinion, since you've had the blood drawn, and won't do a biopsy anyway (and I agree with that decision), you might as well put him on the diet right now! I see no good reasons not to.

Also, at the age of three, there are many false negatives, both for the blood work, but especially for a biopsy. The diet test is most valid with little kids anyway.

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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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