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Newbie...and Not Sure If I Have The Dh Part...

Brit

By Brit
in Dermatitis Herpetiformis

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Brit Rookie
Brit
Posted

Hey! My name is Brittany and I am new on here! Some of you may have seen my other posts on the Pre-Diagnosing section but figured i'd ask here also because more people here have it.

OK so I have this rash on my stomach like on my pant line to my belly button. It's red, itchy, painful, and kinda blistering. I have had it for about a year now and the doctors have been saying that it is an allergy to nickel. So they told me to cover up the buttons with liquid plastic and said it should go away in a month. That didn't help!

So can anyone tell me if that is DH?? And what helps get rid of this...

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Karla Newbie
Karla
Posted

Sounds very possible. Are you on the gluten-free diet yet? If so, also avoid iodine in your supplements, sale, etc. I just had a lapse of memory on that one and am paying for it right now with more blisters.

Good luck.

Brit Rookie
Brit
Posted
  • Author

No I am not on a Gluten Free Diet completely. They are doing biopsy's right now to see if I have Celiac Disease but the doctor said that the rash is actually a nickel allergy. But it been getting worse and I havent been wearing any pants with nickel. I have only been wearing shorts and bathing suits and they are like soffe shorts so there is no nickel in them at all. What ever I have learned that Doctors are dumb well most of them anyways...

rinne Apprentice
rinne
Posted

Are your soaps, lotions, laundry soap, etc. all gluten free?

My understanding is that if it is DH going completely gluten free should clear it up but I am new to this too and perhaps someone who knows more will say something.

Pegster Apprentice
Pegster
Posted

I have DH and I get the blisters around my waistband. My dermatologist told me it probably wasn't dh but I know that it is. I also have a nickel allergy, but considering I don't have nickel anywhere near my waistband, I truly doubt that that is what it is. Do use a mild laundry detergent (scent free/ dye free etc.) to start with. If you are diagnosed with Celiac, definitely go on the gluten free diet. Keep in mind, some tests for Celiac (especially blood tests) are NOT very reliable. Biopsies ARE reliable. If you actually have little blisters on your skin, see if you can get a biopsy of the skin NEAR the blister by a dermatologist who knows what he/she is doing. The skin test for DH is very reliable if done correctly. My biopsy was positive for dh, although my blood work was inconclusive. If your biopsy is positive for DH then you have Celiac Disease...no more tests needed. :D

stilljoyful Newbie
stilljoyful
Posted

I had the same thing as a teen (many moons ago) and am just now putting 2 and 2 together.............

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  • Recent Activity

    1. trents
      - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    2. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application. And yes, giving the gluten-free diet 110%. Very careful...
    3. trents
      - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    4. suek54
      - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Hi Im new to this game, so bear with me. May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Healthy Gluten Free Foods low sugar that you found?

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    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      Healthy Gluten Free Foods low sugar that you found?

      By xxnonamexx · Posted

      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
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