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Bfs And Celiac?

Jennhaz

By Jennhaz
in Related Issues & Disorders

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Jennhaz Apprentice
Jennhaz
Posted

I dont know if anyone remembers me but back in June I did not know if I had celiac disease or not but have been on a gluten free diet. I was getting twiches, vibrations and tremors all over my body.. Some people on here thought I may have neuropathy but I dont. I have BFS Benign Fasciculation Syndrome and I was wondering if celiac could cause this? My Dr. doesnt think so but always wonder. I have to have a celiac test done but have been on gluten free diet for like 5 months...I never had any big problems except for bowel problems once in a blue moon but hives I would get when I would eat wheat. Anyway I was just wondering if anyone else has BFS with celiac?

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Guest katzmeow21
Guest katzmeow21
Posted
I dont know if anyone remembers me but back in June I did not know if I had celiac disease or not but have been on a gluten free diet. I was getting twiches, vibrations and tremors all over my body.. Some people on here thought I may have neuropathy but I dont. I have BFS Benign Fasciculation Syndrome and I was wondering if celiac could cause this? My Dr. doesnt think so but always wonder. I have to have a celiac test done but have been on gluten free diet for like 5 months...I never had any big problems except for bowel problems once in a blue moon but hives I would get when I would eat wheat. Anyway I was just wondering if anyone else has BFS with celiac?

I'm sorry but I don't recall reading your initial post but I can say that I had a lot of muscle twitching(spasms) all over my body but more so on my calves. I also had this vibrating type feeling in my legs but not the tremors.....

I would suggest getting all your blood checked for vitamin deficienc;y from folic acid, B12, folate, Vit D etc. and see how that comes out. Since being gluten free one year now I have gotten much better but will still get the muscle twitching every now and again. I'm thinking it seems to happen after I've had vinegar but I'm still not sure.

Don't stop at Doc #1 if you don't like the answer and you have doubts. Never stop researching and taking their word as final. They certainly don't have all the answers.

Jennhaz Apprentice
Jennhaz
Posted
  • Author

I have had all bloodwork done and went to a neurologist who dx with Benign fasciculation syndrome. They do not know if it is a brain, muscle or nerve disease. Anyway it is benign and I belong to the BFS support group and none of them have had any problems with gluten, I dont even know if I do but will get tested. I guess my question is also if I eat gluten will my neuro problem get worse? Do you guys cheat sometimes?..Thank you..Jenn

Jestgar Rising Star
Jestgar
Posted

I have fasciculations and have all my life. They haven't changed at all since going gluten-free.

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    • Scott Adams
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      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
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