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How Long Were You On Gluten B4 You Got The Test?

lyndszai

How many months did you stay on gluten so you could get tested?  

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lyndszai Apprentice
lyndszai
Posted

hey everyone i was just how long you stayed on gluten to get tested . Im surpose to get tested in about a month :( sence ive aready been gluten-free i know thats gonna screw my test up cant wait till i go back gluten-free it will be the best day of my life lol :D .Thanks

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burdee Enthusiast
burdee
Posted

Hey Lyndszai: I couldn't vote because you didn't include a category for those of us who went gluten-free as soon as we suspected we had gluten intolerance/celiac and then tested later with Enterolab (while still gluten-free). Maybe that's info for another poll and I just have to skip this one. :blink: I went to a naturopath 5 days after I started avoiding gluten, hoping for tests. Rather than giving me blood/biopsy tests, he persuaded me to just keep following the gluten-free diet and listen to my body. However, my intermittent gluten 'slips' and recurring symptoms made me want more conclusive evidence that gluten was really causing my problems. So I tested with Enterolab 8 weeks after going gluten-free and my results STILL showed positive gluten AND casein antibodies, positive autoimmune reaction to tissue transglutaminase and one of the main genes for celiac. I wonder how many others used E-lab after being gluten-free a while and how long they were gluten-free before testing. <_< OKAY, I'll do my own poll and not mess up yours. :D

BURDEE

flagbabyds Collaborator
flagbabyds
Posted

I was diagnosed and had the tests before I ever went gluten-free so I wasn't sure what to put

gf4life Enthusiast
gf4life
Posted

I went back on gluten for two months for the biopsy, and it was negative. I was hoping it would be enough time, but according to Dr. Peter Green (Columbia-Presbyterian Medical Center) it takes 3-6 months or longer to be really accurate. And I've read in Dangerous Grains by James Braly and Ron Hoggan that it can take up to 5 years to cause enough severe damage for most doctors to diagnose Celiac.

Two months was enough for me. I got so sick and it took longer than two months for me to really start feeling better. I wouldn't recommmend it to anyone, unless you really have to. But I am glad to have gotten the biopsy anyhow, since if I ever have another done it may show improvement when the slides are compared.

God bless,

Mariann

lyndszai Apprentice
lyndszai
Posted
  • Author

burdee

Sry about that im not sure on how to edit the poll

gf4life

sry to hear that you went threw all that for 2 months and still ended up with a negative.I think thats whats going to happen to me too I just have a feeling.To me I dont need someone to tell me how I feel and what I have I know what it is and I dont need a piece of paper to prove it.I dont think its worth it but what can I do im a kid.The way i see it if it shows up neg. im going to ignore it

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

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    • rei.b
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      By rei.b · Posted

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