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Feels Like Growing Pains?

catfish

By catfish
in Related Issues & Disorders

Recommended Posts

catfish Apprentice
catfish
Posted

I wasn't sure where else to put this, but since I've been gluten-free I've started having skeletal pain, particularly in my legs, ankles and shins. I'm 33 years old but it hurts exactly like growing pains which I haven't had since childhood. I'm wondering if this could be caused by my body metabolizing calcium unlike it has been able to do previously. Are my bones making up for lost time? Has anyone else experienced anything like this or is this probably just an unrelated problem?

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flagbabyds Collaborator
flagbabyds
Posted

I had pains exactly like that but about 10 times worse and couldmn't walk for 2 omnths

lyndszai Apprentice
lyndszai
Posted

Im getting pains like that all the time now they started when I went back on gluten for my test ive had them for 11 days now and it really hurts.

strack2004 Rookie
strack2004
Posted

Catfish, I still don't know if I have celiac or not, but I do have ankle, heel pains especially in my right foot that are driving me up a wall. I also have shoulder aches and aches in my hands. Since I am older (76 yesterday!) I have thought these to be arthritis. However this heel pain always gets worse when I eat more heavily of gluten. I have been tested for celiac with the blood tests at Mayos, they are in the very low negative range. Am debating whether to go with the diet anyway since gluten does seem to affect my heel/ankle pain. Have had that before and had cortisone shots. Don't want to do the shots anymore. Also may explore further testing at entero labs or possibly ask to have a biopsy at Mayos. I remain on the gluten until I get some more information. I have also begun to have shin pain . Don't know if this addresses your problem or not, the ankle, shin pain caught my attention. Cheers, Strack004

karen149 Rookie
karen149
Posted

Hi,

This is happening to my daughter right now. She's only 3, but I called her endocrinologist yesterday with the same question. My daughter cries that her arms hurt and she is waking up at night with pain. The doctor said it is most likely her system getting back into growing mode and starting to absorb nutrients. :)

  • 3 weeks later...
erica Rookie
erica
Posted

Hi, I actually have this problem when I am not off gluten. I had it for years before I knew I had celiac disease and it stopped when I went off gluten. I am now back on gluten for a short period to have an endoscopy and within 2 weeks of eating it again, my leg pains came back.

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

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