Anyone With Fructose Malabsorption Here?

[Chako]

Hi! I am sorry I have not been around for a bit. To bring you up to date (and to sum up) my 4 year old son has had chronic diarrhea and wicked responses to food for nearly 3 years now. Repeated celiac panels and bloodwork come back negative for celiac or malabsorption issues. The constant here is his chronically high SED rate indicating irritation (somewhere) and his reflux. He does have allergies to milk and to peanuts.

We are having him scoped on Sept 11. Based on his bloodwork recently and how it does not indicate celiac at all we were instructed to reduce fructose (oh, gee what a nightmare that is to eliminate! Gluten free seems ever so slightly easier to do!) and we have some great results. He is getting to the toilet and get this... his stools are looking almost "normal" That is SO strange to have that happen and can not be a co-incidence after 3 years of his guts liquifying and pouring down to his socks, right?!

I have done a bit of preliminary research and see that it is STILL linked to celiac in a lot of cases. You have informed me so much about celiac and have been a great source for knowledge so I was wondering:

1. Is celiac normally linked to this?

2. Is there anyone here with a kid who has this?

3. Any advice if it is confirmed?

Today I gave him some carrots, the little baby ones that he has not had since January this year (we have him on a very limited diet as when we vary out he explodes beyond belief). Today he had a meltdown of epic proportions at daycare which carried on to home. His belly swelled up and he was miserable. He writhed around here and there. I expect a full blowout by tomorrow morning as this would be his normal thing to do after ingesting a food he is intolerant too. Everything else today was tried and true for him.

Thanks for any help you can give me.

[mle-ii]

I'm pretty sure I have Fructose Malabsorption. I can eat it in limited quanties, but eat too much I get very gassy, bloated, crampy, loose stools. I'm guessing that due to damage done to the villi by celiac or gluten intolerance causes the fructase (the enzyme that breaks down the complex sugar into simple sugars that the body can digest) is limited or non-existant depending on the damage done. So the complex sugars get into the colon and bacteria has a party, creating gas, toxins, etc and I'm sure the complex sugars irritate the colon as well.

If you do a search for fructose malabsorption and my user name mle_ii you'll see some more info.

[CDFAMILY]

Hi, it has been a year since I read Elaine Gottscholl book, "Breaking the Vicious Cycle" on the SCD, Specific Carbohydrate Diet but I do believe she addressed this problem.

Open Original Shared Link

"The location of the sugar splitting enzymes, the disaccharidases, in the membranes of the intestinal cells makes them very vulnerable to damage from many sources. A vitamin deficiency of folic acid for example and/or B12 can prevent proper development of the microvilli which carry the disaccharidases. An abnormally thick layer of mucus produced by the intestinal cells can prevent contact between the microvilli enzymes and the disaccharidases, lactose, sucrose, maltose and isomaltose. In addition irritating toxic substances produced by yeast bacteria or parasites which have invaded the small intestinal tract can cause damage to the intestinal membranes destroying their enzymes."

About a year before my Celiac diagnosis I started taking mega B12 and folic acid because of a deficiency which I thought caused all the neuropathy. After a few months I noticed a great improvement with my major gas problem. I then insisted my daughter take this too as from birth she always had explosive gas and burping. She too almost stopped all problems.

The problem is that this did not stop the Celiac disease from progressing.

I don't quite understand this still but it is an interesting area.

Hope this helps a little!

celiac disease Mom

[Chako]

Thanks so much for your replies! Great information as always.

Has anyone actually been tested and confirmed for this or is this another case of trial and error for determination? My GI said that she can not tell by scoping but that there is a genetic test available and also a hydrogen test should Curran be clear and no other obvious reasons for his irritiation or high SED rate be apparent.

I am astounded at the direct link for his pain and discomfort yesterday being carrots. I will do another trial for him and see if we can find what his comfort level is for fructose as I understand this does exist for most sufferers.

I am also curious of the link between this and celiac too. It seems like there are members with both and that is what the research I have found has told me too. I guess I can not rule it out even when his testing says no celiac at this stage, right?