Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Your Usual Reaction After Eating Gluten?

graindamage

Recommended Posts

graindamage Rookie
graindamage
Posted

I had been gluten-free for 6-8 weeks and then started eating gluten everyday for 3 weeks since I had believed I needed to eat gluten for the upcoming tests I was going to have. I then went with Enterolab, which doesn't require the patient to eat gluten before the test. I did not get sick at all. I continued to eat gluten for another 3 weeks (6 weeks in total) when my symptoms started to return.

I've been gluten-free for about 5 weeks, and one day I decided to go out and have dinner with my wife and son at one of our favorite restaurants that always has gluten in the foods. I wanted to have the food because I've been depressed that I cannot eat at any of my favorite restaurants anymore. I was preparing myself for a terrible stomach problem, and I had no reaction.

I also believe I am corn intolerant, however, there are some days when I will get sick if I eat something with corn, but other days I do not.

I immediately went back to a gluten-free diet, but I was curious to know if anyone else with Gluten Sensitivity or Celiac disease has a similar experience.

-Scott

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


au natural Newbie
au natural
Posted
I had been gluten-free for 6-8 weeks and then started eating gluten everyday for 3 weeks since I had believed I needed to eat gluten for the upcoming tests I was going to have. I then went with Enterolab, which doesn't require the patient to eat gluten before the test. I did not get sick at all. I continued to eat gluten for another 3 weeks (6 weeks in total) when my symptoms started to return.

I've been gluten-free for about 5 weeks, and one day I decided to go out and have dinner with my wife and son at one of our favorite restaurants that always has gluten in the foods. I wanted to have the food because I've been depressed that I cannot eat at any of my favorite restaurants anymore. I was preparing myself for a terrible stomach problem, and I had no reaction.

I also believe I am corn intolerant, however, there are some days when I will get sick if I eat something with corn, but other days I do not.

I immediately went back to a gluten-free diet, but I was curious to know if anyone else with Gluten Sensitivity or Celiac disease has a similar experience.

-Scott

Okay scott here we go: Before I was diagnosed everything I ate went through me. I ended up just eating

the following diet for breakfast lunch and dinner for three weeks- nothing else !! :

white rice-- canned ham-- cooked yams/ granny smith apples mash. I made the yams from fresh produce and the rice was not the boxed crap. I did this during the holiday season of christmas.

It was hard but I did it . I figured something was going on, poss a food allergy. I gradually added a food at a time SLOWLY!! one new item every week and when I started to get sick I knew I needed to see an allergist. I suggest that you see one and have them test for food allergies using your blood. Not the skin prick. I tested positive for celiac using the titer test. I also was told that a certain test % result was needed for me to be truly allergic. I was told by my Kaiser doctor that a % 0f 32% or more is considered to be a true allergic reaction. I found out that anything above o% I needed to get out of my diet. I have deleted egg whites, all dairy, all wheat and gluten including oats, peanuts and codfish. I say start with a diet that is as close to natural as possible, refined /boxed foods are killers of the body- very toxic & nutrient deficient.

I would then keep on it for at least a month then add a new food every 3 weeks. any reaction at all-

such as feeling not just right, tired, headaches diarrhea anything -- get rid of it. You will need to keep a log book to track everything. I would also get tested at the same time. It wouldnt hurt to do both the skin and blood testing. You are in the time of discovery and it is a difficult time. Cheating will only set you back.

As far as eating out, I have been able to eat at applebees- steak but I have had to return my meal twice due to bread being put on top of my steak. I seem to be able to eat at panda express. I really dont trust ant one so if i do go out It is a rare occasion. good luck

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,197
    • Most Online (within 30 mins)
      7,748
    MandyRooney
    Newest Member
    MandyRooney
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...