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Is Finding An Ob With Celiac Experience Important?


Ann K

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Ann K Newbie

Hi! I have a question that I haven't been able to find an answer to yet, and I'm hoping one of you can help!

I was diagnosed with celiac's disease 4 years ago and have been gluten free ever since (except for the occassional accident). My husband and I want to start trying to have kids, but I am a bit worried about having celiacs and being pregnant. I guess my main concern is having complications due to celiac disease. So, that brings me to my question: is having an OB that knows about celiac disease important, or will any OB do?


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KayJay Enthusiast
Hi! I have a question that I haven't been able to find an answer to yet, and I'm hoping one of you can help!

I was diagnosed with celiac's disease 4 years ago and have been gluten free ever since (except for the occassional accident). My husband and I want to start trying to have kids, but I am a bit worried about having celiacs and being pregnant. I guess my main concern is having complications due to celiac disease. So, that brings me to my question: is having an OB that knows about celiac disease important, or will any OB do?

I don't think you should have any problems. My ob didn't know much about Celiac and sent me to a GI when I was first pg. He said after the first few risky weeks that I should be fine but really stressed to me to watch what I ate. He told me no eating out that any amount of Gluten could be harmful for the baby. I followed his instructions for about 6-7 months and then ate out on occasion. 9 months is a long time. But basically, the GI couldn't do anything or say anything that I didn't already know. One important thing to stress to your OB is the hospital food. Have her write it on your chart that you can only eat gluten-free. Mine did that but I still had a horrible time with all that at the hospital. Relax and I hope you get pg real soon!

Melzo Rookie

I don't know that it is very important to have an ob/gyn that knows about celiac disease. I am seven months pregnant, and none of my ob's know what celiac disease is (other than what I told them about it). Just make sure that you stay on your gluten free diet while pregnant as best you can (the occational accident is ok and is NOT going to harm the baby). Just don't go around thinking that you can eat gluten because you're pregnant!!! Also, take gluten free prenatals - some ob's will give you a script without thinking about it being gluten free or not.

You may find this on this board or by doing research - woman who are pregnant with celiac disease (and are treating it) are MORE healthy and will have a healthier baby than normal woman without celiac disease. Of course, your baby can still get the celiac disease gene!!!!

Good luck and DON'T WORRY! I worried too about complications at first but as I have been going to all my checkups, I see that the baby is perfect and my pregnancy has been perfect. I stopped worrying.

Anya78 Explorer

I agree with previous posters. I'm due any day now. My OBs know of Celiac, but they are by no means experts and I bet it would be really, really difficult to find an OB that has more than just general knowledge of it. As long as you are well educated as to what you can and can't eat and you remain on the strict gluten free diet, you'll have no problem. I would just recommend that you be particularly careful when eating out. I didn't eat out until I was probably 5 mos. pregnant just because I was worried about cross contamination. Since then, we've been out quite a bit, but I mostly stick to restaurants that I know have been safe for me in the past and I'm very picky with what I order.

Anya

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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