Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Jenny's Enterolab Came Back Positive

Nantzie

Recommended Posts

Nantzie Collaborator
Nantzie
Posted

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 15 (Normal Range <10 Units)

I was kind of expecting this, but I was hoping that it would be negative. It was easy for me to go gluten-free because I knew how bad I felt. It's going to be harder with her. Harder for me than her I'm sure...

I'm totally ahead of the game on the food. I've been giving both the kids my gluten-free food on occasion. They love my gluten-free crackers and my gluten-free bread. I've only got a few things that I need to replace for her. So that's no big deal.

I'm worried about how my husband and his family is going to react. At first they all thought I was full of it when it came to my own celiac diagnosis. They're doing much better and are being really great lately, but I don't know how they're going to react when we're talking about their granddaughter. My recovery was so dramatic that I think they'll be okay, at least eventually.

I'm worried about her preschool a little. I'm probably going to take her out for two or three weeks, just to get her eating figured out. Try some recipes, bake some gluten-free cookies together, get through the first couple accidental glutenings. I'll also need to "inform and interogate" the lunch ladies at her school. We'll see how that goes. They're all really nice there, so I'm sure unless I get some eye-rolling or something equally exasperating, I'll be willing to walk them through the learning process. We have other preschools in the area I can change her to if needed, but she has so much fun there, and loves her teacher, so I want to keep her there if at all possible.

I'm really glad that I found out about celiac and we were able to figure this out for me and for her. Looking back on my life, I had celiac-related issues since I was her age. Over the last few months (since right after she had to be on two courses of antibiotics back-to-back), her symptoms have really come to the forefront. Thank GOD she won't have to go through a life of being tired and not feeling well with no identifiable reason behind it. Thank God she'll be able to concentrate in school. Thank God her career choices won't be based on things she can do while still sleeping to noon because she has insomnia and anxiety dreams every night and is always exhausted. Thank God she'll be healthier than I was all those years.

My son still needs to get the fecal test done. It just occurred to me the other day that if I have to put one of them gluten-free, I'm going to have to put both of them gluten-free at least for now. And with the way antibodies work, if I'm ever going to know if he has gluten intolerance, I'm going to need to test him now. He's got soft stools at least a couple times a day, he's got language delay and although he's normal to tall in height, he's 13th percentile in weight. When you look at him he doesn't look skinny for his height, but he's 2-1/2 and wearing 12month size shorts. 18months are really baggy and 2T's just fall off. I ordered the fecal gluten sensitivity test for him too. The test kit should be here in a couple of days. So a few weeks and I'll have results for both of them.

Well thanks everybody for listening and letting me think out loud.

Nancy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nic Collaborator
Nic
Posted

Hi, my son was 4 when he was diagnosed and he transitioned to the new diet very well. Ocassionally still says he misses cheerios or something like that but has a pretty firm understanding of why he can't eat them. But overall, he has done very well with the food and when someone offers him something he can't have, he says "I can't eat that". I am sure your daughter will do as well :) .

Nicole

Sarah8793 Enthusiast
Sarah8793
Posted
Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 15 (Normal Range <10 Units)

I was kind of expecting this, but I was hoping that it would be negative. It was easy for me to go gluten-free because I knew how bad I felt. It's going to be harder with her. Harder for me than her I'm sure...

I'm totally ahead of the game on the food. I've been giving both the kids my gluten-free food on occasion. They love my gluten-free crackers and my gluten-free bread. I've only got a few things that I need to replace for her. So that's no big deal.

I'm worried about how my husband and his family is going to react. At first they all thought I was full of it when it came to my own celiac diagnosis. They're doing much better and are being really great lately, but I don't know how they're going to react when we're talking about their granddaughter. My recovery was so dramatic that I think they'll be okay, at least eventually.

I'm worried about her preschool a little. I'm probably going to take her out for two or three weeks, just to get her eating figured out. Try some recipes, bake some gluten-free cookies together, get through the first couple accidental glutenings. I'll also need to "inform and interogate" the lunch ladies at her school. We'll see how that goes. They're all really nice there, so I'm sure unless I get some eye-rolling or something equally exasperating, I'll be willing to walk them through the learning process. We have other preschools in the area I can change her to if needed, but she has so much fun there, and loves her teacher, so I want to keep her there if at all possible.

I'm really glad that I found out about celiac and we were able to figure this out for me and for her. Looking back on my life, I had celiac-related issues since I was her age. Over the last few months (since right after she had to be on two courses of antibiotics back-to-back), her symptoms have really come to the forefront. Thank GOD she won't have to go through a life of being tired and not feeling well with no identifiable reason behind it. Thank God she'll be able to concentrate in school. Thank God her career choices won't be based on things she can do while still sleeping to noon because she has insomnia and anxiety dreams every night and is always exhausted. Thank God she'll be healthier than I was all those years.

My son still needs to get the fecal test done. It just occurred to me the other day that if I have to put one of them gluten-free, I'm going to have to put both of them gluten-free at least for now. And with the way antibodies work, if I'm ever going to know if he has gluten intolerance, I'm going to need to test him now. He's got soft stools at least a couple times a day, he's got language delay and although he's normal to tall in height, he's 13th percentile in weight. When you look at him he doesn't look skinny for his height, but he's 2-1/2 and wearing 12month size shorts. 18months are really baggy and 2T's just fall off. I ordered the fecal gluten sensitivity test for him too. The test kit should be here in a couple of days. So a few weeks and I'll have results for both of them.

Well thanks everybody for listening and letting me think out loud.

Nancy

Hi Nancy,

I know exactly how you feel right now. My dh was a little surprised and both of us were concerned about how this would affect the kids. My ds, who is 7 woke up this morning upon his first gluten free day and began crying about how he didn't want this. I guess he hadn't been paying attention to all of the things I *can* eat because he started asking if there was a gluten free peanut butter and gluten free jelly. :D He was relieved to hear that he can still have these. I took him to the grocery store and bought some gluten free treats, and by afternoon he was visibly optimistic about his new lifestyle. I think my dd (4 years old) will be even easier because she isn't as socialized as my ds. Our inlaws don't even know yet that I am gluten-free/cf and now the kids. They will think I'm just weird and denying my children unecessarily. But then again I have never been able to please them. I'm not worried about doing it now either. I feel like you, in that I am preventing a whole bunch of medical ailments in the future for my kids. :)

Nantzie Collaborator
Nantzie
Posted
  • Author

Thanks guys. I told my husband when he got home from work and he's been pretty quiet about it, but then again so have I. He didn't seem surprised at all. Time will tell if there are going to be any issues with his family or anything like that.

I'm feeling pretty okay. I found out that there's a R.O.C.K. support group that meets near my husband's work (and we'll be moving out there in about a year or so). So that will be convenient.

I also got glutened earlier today, so that probably accounts for my being down a little. Stupid envelope glue. :rolleyes:

I was thinking about going ahead and just explaining this whole thing to Jenny. She's probably more able to understand than I give her credit for. She's also been the one saying her tummy hurts every few days, having diarrhea and being a lot more tired. So I'm sure on some level, she'll be okay with it. She's probably having more issues that I don't know about. I mean, I never realized I had a headache 24/7/365 until it was gone after I went gluten-free.

Well I hope all of our kids are on the road to feeling better and doing well eating gluten-free.

Nancy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.