Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened?


Guest ~jules~

Recommended Posts

Guest ~jules~

Well I woke up today very tired, and in the bathroom if you catch my drift. I ate no gluten yesterday I'm sure of it, and I'm also pretty sure I didn't get contaminated some other way, I've been really careful. The only thing I can think of that was different was the soy sauce I bought yesterday thats gluten free. Ugh!!! But I am also new to this, should I just have "days" like this randomly until I heal? Its really important that I know the ins and outs of this thing, I have a family, and business to run, I'm tired of waking up in the morning one day fine, and the next crappy. :angry: Ok, enough whining...I was wondering if there are anymore extensive test for food allergies that I can request monday when I go in to see my gi doc? I know others here not only have celiac, but many other problems too, I wonder if I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

I've been finding that my mornings like that happen about 36-48 hours after any likely source of gluten (usually cross-contamination), so could this be a more delayed reaction? I also had mornings like that after a day when I'd eaten dairy.

eleep

Nantzie Collaborator

Have you gone gluten-free with your personal care products? Check your haircare products, lip balms, lotions, cosmetics, etc. Does your boyfriend/husband use lip balm, shampoo, lotion that has gluten in it? Anything you touch with gluten in/on it, if you then touch your mouth or eat without washing your hands first, can get into your system.

Also, your food prep items and surfaces. Are you using a cutting board or wooden spoons that were used with gluten items? Nonstick pans that were used with gluten?

Nancy

CarlaB Enthusiast

I had that happen with dairy or when I had eaten away from home. I still seem to have good days and bad.

Guest ~jules~

You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

CarlaB Enthusiast
You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

If I knew how to get rid of it, I wouldn't be online right now ... I'd be out doing something!! All you can do is stay hydrated and time takes care of it.

Watch out for wooden spoons, you'll need new ones. I'd get your own pan if that's the method at home, or be sure it starts getting washed.

We just made our whole house gluten-free because I still am not better. It has to be contamination, and I'm pretty obsessive about it.

eleep Enthusiast
You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

Welcome to the club! You will get used to it.

My basic remedies for my own "bad attitude" have been lots of water and sublingual B-complex, Immodium (I find it helps my moods as well) and whatever exercise I can get (preferably outside). It's better for me to keep eating, so I generally stick with blander stuff. However, I do try to eat fruits, veggies and fibrous stuff.

I have headed what looked to be one very bad insomnia-provoking glutening off at the pass with activated charcoal, but still felt foggy for a few days afterwards. The activated charcoal will absorb nutrients as well as toxins, so don't take it within four hours or so of taking supplements or anything like that (sublingual vitamins, of course, won't be affected).

eleep


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~

I am getting the diet down, but It seems the cross contamination is going to be an issue. I love my husband to death, but I'm still nagging him for bad habits from 5 years ago! Okay, tonight we talk about becoming a gluten free household, he already offered, so I may as well do it. Thanks for the support everyone, ugh I need a nap! :blink: (at least they like the bread I make now :P )

Nantzie Collaborator

Yep, cross contamination is what kicks your booty. Not eating the bread or whatever is the easy part.

I ended up switching over to stainless steel pans. They're actually way easier to deal with than nonstick or anything else. Nonstick gets scratched up SO easily. With stainless, I've found that it's even easier to clean. You can just scrub the heck out of it if you need to (I've found that that's rare), and when you're done it looks as perfect as the day you got it. And gluten doesn't stick to it. So you can use it for gluten and gluten-free cooking. Just making sure you clean it thoroughly between the two. You might want to buy a small saute pan or something to try it out and see if you like it. I really didn't think I would, and now I wish I had gotten stainless a long time ago.

My husband is the same way. He's slowly gotten better. But a few weeks ago, he opened up his gluten-spaghetti leftover container next to my gluten-free cutting board and ended up dropping a piece of spaghetti and sauce right on my cutting board. I didn't know until an hour later, so the sauce had soaked into the grain. I bought a new cutting board the next day. Taking a chance with getting glutened isn't worth an item that I can replace for less than $10.

Nancy

Guest ~jules~

Ya, I'm headed to wally-world today to buy pans, cutting board, toaster, etc...I'm really glad I joined this group, my gi doc sent me home with a diagnosis, and "begin gluten free diet" I have no idea what I'm doing, I feel like I'm walking blindfolded through a minefield, not fun so far, nopers.... ;)

jerseyangel Proficient
Ya, I'm headed to wally-world today to buy pans, cutting board, toaster, etc...I'm really glad I joined this group, my gi doc sent me home with a diagnosis, and "begin gluten free diet" I have no idea what I'm doing, I feel like I'm walking blindfolded through a minefield, not fun so far, nopers.... ;)

Ha--my doctor did the same thing--14 months ago!

When I stumbled onto this board a couple months later, I learned more than I could have ever imagined about this disease. I'm glad you found us--you'll do fine :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.