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Whoooooaaahh -- Panic Attacks And Bloating Whenever I Eat


eleep

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eleep Enthusiast

I actually doubt I'm going to start smoking again -- it's been my dearest wish for years to quit smoking for good and the major celiac-related symptoms were part of what kept pulling me back in every time I quit. I was also spending a lot of time among people who do smoke and I honestly don't feel that will be an issue any longer either.

I was less of a social smoker than an anxiety-related smoker -- and, despite these panic attacks right now, the anxiety had a lot to do with gluten. Now that I know this, it's just a lot easier to control and deal with things overall.

I'm actually looking into getting acupuncture as well -- have been getting recommendations from friends. I think it's time to get my body back into balance and I've been doing as much as I can on my own. I kind of feel like I've got a new start brewing and I'd like to do as much as I can to begin with a clear and healthy body.


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CarlaB Enthusiast

Yea, I was just thinking about it for your symptoms, you come across as sure you're giving it up for good! I'm feeling somewhat better today, but still very low energy, but it was only one session. He also warned me that I would probably be tired from it.

I'll be interested to hearing more about your "new brew" ;) Is it still brewing? I'll pm you later, I've gotta run across the street to get the kids signed up to ride the bus this year.

eleep Enthusiast

I always feel extra-tired after massage or any kind of energy-clearing bodywork, so I'm not surprised you feel that way after acupuncture. If I go home and nap and drink lots of water I always feel like I'm walking about a foot above the ground for a good week or so afterwards!

The only thing I've got brewing right now is trying to get comfortable with writing as a slow marathon-like process! Oh, and I'm trying to talk a very shy male friend into taking latin dance classes with me -- he's having trouble asking out a girl he really likes, and I'm trying to get him used to just being out with a woman.

Mayflowers Contributor
I always feel extra-tired after massage or any kind of energy-clearing bodywork, so I'm not surprised you feel that way after acupuncture. If I go home and nap and drink lots of water I always feel like I'm walking about a foot above the ground for a good week or so afterwards!

The only thing I've got brewing right now is trying to get comfortable with writing as a slow marathon-like process! Oh, and I'm trying to talk a very shy male friend into taking latin dance classes with me -- he's having trouble asking out a girl he really likes, and I'm trying to get him used to just being out with a woman.

Told you it was the caffeine. :D Probably also since you're going through withdrawals. I hear ya. I'm an ex smoker too. I smoked a pack and a half, sometimes 2 packs a day.... It's all well and fine to try accupuncture and massage but that only handles it temporarily. The attacking anxiety course helps you to control and stop the panic attacks and anxiety before they start. If you are educated on what it is you have, you can control it not rely on some temporary method.

eleep Enthusiast

Just a quick update because I finally had to call a doctor (and my therapist) on this one -- they think I have been having prolonged anxiety because of using the patch to quit smoking -- essentially, each time I've "stepped down" a patch, I've gone into another bout of withdrawal -- which includes anxiety irritability and crying jags -- was made worse by that glutening two weeks ago. Essentially, I ripped off the patch for good on Thursday night and I'm only just now starting to feel normal -- apparently nicotine cessation also can make people extremely sensitive to caffeine.

This past weekend has been pretty ugly, actually -- the doctor told me to give it 72 hours with _no_ nicotine and see what happens. Just got back from a party with some good friends and I'm feeling fine.

I have honestly never experienced anything like this when quitting smoking -- I can think of a lot of reasons why this experience has been so intense, but perhaps it also has to do with the fact that I'm a lot more aware of stuff in my body now that I'm gluten-free -- my therapist also points out that this is a bit of delayed grief -- as he thinks I'd have experienced had I reacted to the breakup by going on drinking binges or something like that -- any numbing activity doesn't really take care of the grief, but just suppresses it for a while making it more surprising and intense when it does pop up.

utdan Apprentice

A great treatment for depression/sadness is serving others, maybe go volunteer a little time at a center for handicapped children.

A good product is -- Peter Gillhams' "CalMag Plus" supplement. It is a 3:1 magnesium-calicium ratio powder that is dissolved in hot water. It supports having calm nerves.

[edited]

tsomo Rookie

Gluten contamination gives me anxiety and bloating. I think youre being contaminated but you would have to review everything youve eaten to find the culprit. Do you keep a food journal?

Tsomo


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eleep Enthusiast

I was glutened through CC about two weeks ago -- I'd been using the patch for a few weeks after quitting smoking. After about a week of clear gastro-aftermath from the glutening (surprisingly, not much anxiety), I stepped down to the next lower patch -- that was when the panic attacks started to hit (because I was going through withdrawal). I think the bloating was leftover from the earlier glutening -- I was just linking it more clearly to the anxiety because my anxiety levels were way up in general from withdrawal.

The bloating went away after a couple of days -- the panic attacks did not. The panic has been coming from nicotine withdrawal -- which was prolonged because I didn't just do it all at once. Since the weekend, however, I've been a whole lot better and I think my brain chemistry is starting to normalize and settle down -- I'm still taking Ativan in the morning, but generally don't need the other two doses during the rest of the day.

One of the problems was just that I was uneducated and unprepared for the intensity of the withdrawal -- the first couple of days I really just had to gut things out in the house by myself since many of my non-smoking friends were unavailable and my family technically doesn't know that I smoke, so I didn't want to call them for support.

Also, some really nasty news hit over the weekend (it made the nationals -- there's an article in the Chronicle of Higher Education) about cuts they're making to my department (the entire College of Liberal Arts and Sciences, in fact), and I was dealing with some colleagues who were freaking out as well as trying not to panic about my own situation. So -- my available friends this weekend were either 1) smokers who wanted to party or 2) nonsmokers who wanted to obsess about the end of professorships as a viable job option. Hence the fact that I was kind of, um, alone for a while. Things got a lot better on Sunday when I went for a hike with a friend who's in neither of those camps -- then I went to a party where a bunch of grownups got silly over "Dance, Dance Revolution" and a bunch of card and trivia games -- which made everything a whole lot better. I'm still a mean competitor even when I'm in withdrawal!

I should add that a lot of hiking, running, yoga and water have helped as well.

  • 1 year later...
Discovery Rookie
I get severe anxiety attacks from gluten exposure. It was one of my major symptoms prior to Dx. It feels like you're dying or going to pass out, so I can understand your frustration and why you're scared.

As mentioned, smoking withdrawal and stress don't make things any better.

I understand that you don't want to rely on pharmaceuticals to make you feel better. But that is what they are designed to do. As long as they are used appropriately in moderation and only short term when needed, go for it. Don't feel guilty. Right now you need to get over this hump, and without suffering as much as possible.

Another option when you feel an attack coming on is to lay down, and/or try Lamaze breathing. Yes, you will look (and sound!) ridiculous, but it works.

Avoid caffeine and any other stimulants.

Try to remember that the feeling will pass, and that your body is trying to heal.

Some people find Pepto Bismal helps coat their stomach (anti-inflammatory and pain relief). I assume some of it manages to make it's way into the small intestine too.

HELLO Doll :) THANKS LOADS for bringing up the anxiety attacks and gluten. It feels like I've landed in the right place. I have been receiving psychiatric treatment for YEARS. Now I realize I have been being treated backwards, not being treated for the core disease, Celiac. I noticed the anxiety was associated with eating, too. Your response makes me feel sane.

I especially have high anxiety right before and after a bowel movement. Then thanks to your posting I now realize that it only happens when I have inadvertently eaten gluten (something usually discover after eating cross-contamination). Thanks to your posting, I have been able to put those two pieces of my puzzle together. Now when that happens, I dig around and am able to find out the gluten source. I can't thank you enough. All this time I just thought I was crazy.

I can't thank you enough.

I am still looking for the Web medical finding about how Immodium and Lomitil exacerbate Celiac symptoms....I can't remember the particulars, just that it was a red flag for me to discontinue. Also, I now take 25 mg of Xanax after b. m. anxiety attack. Amazingingly good - stops all anxiety in its track.

Discovery Rookie
Does anyone know how best to take the Ativan so I don't overdo it and risk becoming dependant? I've kind of been under-estimating what I needed because I'm concerned about that -- today I finally took the 1/2 tablet after two earlier panic attacks which I dealt with by napping/meditating and going for a run. I knuckled under because I just HAD to get some work done!

Should I continue with the 1/2 dose? How long do these last?

Hello eleep: sure identify about the Ativan. Immediately after I began it, ALL gas, bloating, anxiety went away. Was on it for 2 years, very small dose in a.m., so that I could have a somewhat "normal" morning. For the past 2 months have been reducing dose (under psychiatrist's watch) and it has been one of the hardest things I've ever done. The good news is, if you find yourself in this position - quitting can be done, just gotta stick with all the awful withdrawal. Now I have more empathy for those in similar boats.

I was only able to stop Ativan once I discovered I had Celiac disease. I went to a lot of doctors and no one diagnosed....went on the Web and found I had 95% of the symptoms, started the diet, had lots of errors because of unknows, e.g., cross-contamination and failure to disclose on labels....but am truly amazed at how much anxiety and gluten are related. I can totally understand my poor body screaming out for help because it I was being poisoned by gluten. What's a body to do?

Thank you for this wonderful chat, it has helped me a lot.

Discovery Rookie
Gluten contamination gives me anxiety and bloating. I think youre being contaminated but you would have to review everything youve eaten to find the culprit. Do you keep a food journal?

Tsomo

Thank you for this information....I never thought, duh, of keeping a journal. I will start today.:)

  • 1 year later...
theglutengirl Newbie

P)art of the reason ur stomach be be inflamed is because immodium has gluten in it.

high amounts of stress can also set off a gluten like reaction

try to calm down and get ur life in order (easier said then done)

reach out to those close to you, and try to make urself happy, or at least calm.

maybe you need to consider therapy and possibly phyciatric medication.

this is all so much to go through at once, its okay to admit that u might not be able to do it alone.

I hope that ur life gets easier, and i wish you the absolute best of luck

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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