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Migranes


JUDI42MIL

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JUDI42MIL Apprentice

I think Im reading that a lot of you have migranes as symptoms.... Am I right?

My mom has celiac. I have celiac. My 19 yr old daughter has horrible stomach problems. The Dr told her to just go on the diet, as he is sure she has it also.

My question is my 27 yr old daughter...has always gotten horrible migranes.......Drs say they seem to be hormonol........ she has no stomach problems. But do yall think she should be tested also?????????Could gluten be causing these?


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celiac3270 Collaborator

If you have Celiac and your mom has celiac disease, then your daughter should be tested even if she had no symptoms at all......if she also has migrianes, definitely.

gf4life Enthusiast

I agree with celiac3270. Your daughter should be tested regardless of symptoms (or the lack of them).

I had digestive problems off and on during my childhood, which pretty much went a way in my teens, and came back worse after I had children in my mid-twenties. The consistent symptoms were migraine type headaches and joint pain. I still get both symptoms, but not as often and usually not as bad.

God bless,

Mariann

glen4cindy Apprentice

I posted earlier in one of the forums here about not being sure if I was born with celiac disease or if it developed later on.

I can say for sure that I have had headaches some very severe for as long as I can remember. Some of my earliest memories are of terrible headaches. I can remember being in 2nd grade. The neighbor kid was facinated with being a fireman (which he went on to become). He thought that everyone should share his passion for being a fireman.

I can remember thinking and even saying, "I am afraid the firehouse bell would give me a headache, and this would make it hard for me to fight the fire." Well, of course, the adults just brushed me aside. They didn't believe that I could be having headaches the way I claimed to be having them. They said I was too young to have headaches.

Over the years, I was sent home from school several times vomiting with headaches. I have missed days of work with headaches, and have somewhat of a headache as I sit here and browse this forum.

My chiropractor says that the vertebra 1,2 & 3 are malformed, probably due to a serious fall as an infant that caused them to develop improperly. Well, I understand that I did have a serious fall at 6 mos. old. So, this being the case, and having hereditary pancreas problems, gave me a headache DOUBLE WHAMMY. So, I won't press my luck! :)

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    • trents
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    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
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