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Prometheus Lab Blood Work

mumseyh

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mumseyh Rookie
mumseyh
Posted

Has anyone had experience with this company? My doc has recommended a Celia Gene test to determine if there is a family history. My blood work is positve and the biopsy is negative. My GI doc does not recognize gluten intolerance, but family doc is up on the latest research. I am thinking of just going gluten free and skipping this $480 test that isn't covered by insurance. Family history: My mother has an ilieostomy from severe ulcerative colitis. Also has skin form of lupus. My father died from complications after 5 surgeries in a week for a severe intestinal blockage. His autopsy stated undiagnosed diverticulitis and ruptured diverticulum. I have been treated for IBS since high school (over 30 years) with minimal results. I also have GERD and Barrett's Esophagus. My sister has some suspicious problems, as well - mainly ulcers in her mouth that nobody can clear up and yeast infections. Any insight would be appreciated.

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penguin Community Regular
penguin
Posted

Positive bloodwork is a positive diagnosis. A biopsy can only rule celiac in, not out, since damage can be patchy or further down the intestine than the scope can reach. I say go gluten-free and skip the expensive gene test unless you need it for peace of mind.

And welcome! :)

mumseyh Rookie
mumseyh
Posted
  • Author

Thanks! I am reading up on going gluten free and looking forward to it. My husband thinks it is a great idea, and said he will be supportive. I was worried he might think it was a crazy whim, but he really respects the family doc for turning us on to the research. I have just lost 12 pounds on weight watchers and I asked if they have info about adapting to gluten free. The teacher suggested the core program which is mainly meat, fruit and veggies. It sounds like it should work. Thanks for the encouragement. Glad to hear your test went well, too.

penguin Community Regular
penguin
Posted
Thanks! I am reading up on going gluten free and looking forward to it. My husband thinks it is a great idea, and said he will be supportive. I was worried he might think it was a crazy whim, but he really respects the family doc for turning us on to the research. I have just lost 12 pounds on weight watchers and I asked if they have info about adapting to gluten free. The teacher suggested the core program which is mainly meat, fruit and veggies. It sounds like it should work. Thanks for the encouragement. Glad to hear your test went well, too.

What a co-inkidink...I'm on WW, too! It's very easily adapted to gluten-free, and I eat flex, not core. It's really easy, actually. Core might be easier for you in the beginning of being gluten-free, while you're learning about what is and isn't gluten-free. I'd reccommend Tinkyada pasta, it's made from brown rice and has the same points value as normal pasta, it's tasty, and it's core!

AndreaB Contributor
AndreaB
Posted

If you still want to have the gene test done, enterolab does a gene test plus the whole gluten panel for $369. It incluedes ttg and malabsorption and maybe still dairy. They probably offer the gene testing separate. Check out their website Open Original Shared Link.

chrissy Collaborator
chrissy
Posted

my son was tested by promethius because he is IgA deficient. we are enrolled in a celiac study and all of our family will be gene tested. i really want to know who has the genes----then i will know who needs to be tested on a regular basis to see if celiac has become activated.

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