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Dh Iodine Test On My 10 Year Old -yikes!

Isabella

By Isabella
in Dermatitis Herpetiformis

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Isabella Rookie
Isabella
Posted

Holy cow! I tried a dropper of 3% iodine on my daughter's ankle where she once had a strange very itchy poison ivy -like rash before ( presently it has hypopigmentation of very pale white blotches where the blisters once were- never been tested for celiac or DH, mom just has a hunch..). The doctors have taken 16+ years to believe that SOMETHING could actually be wrong with me. So as I am yet patiently awaiting celiac tests as the doctors are on a two week vacation...patience, patience! I thought , ok, well I shall try the iodine on her leg. Oh my #$! Within a minute of putting it on her leg and wiping it dry, she suddenly turned stark white in her face, felt intense stuffy pressure in her ears as if coming up from out of the pool, began to cry, and fell down. Her left over pale white scars which were on various parts of her body turned bright white and appeared everywhere!!! What was moments earlier a giggly little 10 year old was lying on the floor in panic mode. I rushed to wash off the iodine and after a little bit she came back to her senses. I swear it was as if she was going into anaphylactic shock. Scared the daylights out of me. Hmmm...do you all think finally, maybe JUST MAYBE? the doctors will believe me now? I took pictures. I believe she has the DH of celiac and I don't dare test myself with it since I have Stevens Johnson Syndrome which already makes doctors flee. Last time I was in the ER, I thought it was a SJS attack ...now that I see how she felt, I think it was undiagnosed DH for me. The uneducated ER doctor took one look at me in the ER, looked me straight in the eyes, and said, " I can't believe you have ever had SJS, you are too beautiful. You are dismissed. And? Any help YOU may need is not to be had here." he never biopsied my rash or anything. The following day I was so sick. i think all along it was the gluten..we'll see soon, I guess. Has anyone else ever had this reaction to iodine? I know it is an age old way to test for DH. Thanks for listening...Isabella

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Ursa Major Collaborator
Ursa Major
Posted

Wow, that sounds scary! I've never heard of that before. It could show if I have DH (which I suspect I do, but I had an idiot dermatologist who claims I have just eczema). On the other hand, I'd rather not have a reaction like your daughter.

I hope you figure it all out.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Does the iodine test have anything to do with the DH, or is it just an allergic reaction ot the iodine?

lovegrov Collaborator
lovegrov
Posted

That sounds nothing at all like DH. That sounds like a potentially serious allergic reaction.

You need to get it checked out.

richard

ravenwoodglass Mentor
ravenwoodglass
Posted
Does the iodine test have anything to do with the DH, or is it just an allergic reaction ot the iodine?

Iodine will cause a DH rash in sensitive people. You would put some on your skin cover it with a bandage and watch for the rash. The reaction is not typical and I would not only not do it again I would contact her doctor and have her allergy tested for reactions to the iodine that are more allergic in nature. Although if the skin the iodine was applied to was broken the reaction could have been from pain as the iodine would sting like a son of gun.

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