Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do I Know If Gluten-free In Working?

celiac-in-WV

Recommended Posts

celiac-in-WV Newbie
celiac-in-WV
Posted

My husband was diagnosed a little over a week ago with celiac. He didn't have any prior symptoms before except anemia. His question is "how do I know if I am being totally gluten free if it never bothered me physically when I had it in the first place?" He could still be getting gluten unknowingly and it not be bothering him.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

You know, that's a tough one. I've always thought that it must be hardest for people who don't have symptoms. I think with the information you get on this message board, you end up being very well informed. If you haven't already, you will learn about things like cross contamination, getting a new toaster, cutting boards and wooden spoons, and checking your personal care products. So other than that, you do the best you can and double check things that you're not sure of.

Nancy

par18 Apprentice
par18
Posted
My husband was diagnosed a little over a week ago with celiac. He didn't have any prior symptoms before except anemia. His question is "how do I know if I am being totally gluten free if it never bothered me physically when I had it in the first place?" He could still be getting gluten unknowingly and it not be bothering him.

Getting your blood tested like every 6 months or once a year is the only follow-up I was told to do if I felt fine on the gluten-free diet. I got this from Dr. Alessio Fasano from the Celiac Research Center in Baltimore. Dr. Fasano gave a talk I attended back in July 06. Basically the blood test is looking for elevated anti-body levels which would be present if one is still ingesting gluten. If your symptom is only anemia then I would think the anemia would improve after being gluten free. Was the diagnosis made only with the anemia symptom?

Tom

Guest nini
Guest nini
Posted

there are those with Anemia as their only obvious symptom that once they were gluten-free for a while start to notice other things improving that they always thought were "normal"... he may be surprised at what he discovers, and he may discover that the longer he is gluten-free that he actually does start to have reactions of symptoms from accidental glutenings... barring that, I guess just be as vigilant as possible about cross contamination and ingredient reading, and get periodic blood tests to see if the levels go down.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...