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Athlete's Foot/poison Ivy?...then

mari-lyn

By mari-lyn
in Dermatitis Herpetiformis

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mari-lyn Rookie
mari-lyn
Posted

I posted this under another forum before I found this...

About a month ago I had a blistery rash between a couple of my toes on both feet. Not symetrical but close. It spread on to the top of my foot but not too far. I assumed it was Athlete's foot (confirmed by my son and my doctor ) even though I had never had this before. All the Lotramin and foot powder in the grocery store did not get rid of it. When I got a rash on the heels of both hands I figured it was Poison Ivy! Not severe. I have dry scaley skin now. It may be in my head but I have "twitches" of itching/

Discussing celiac disease with people at work I had this light bulb moment - could it be DH? My mother's twin sister was dx 50 years ago with celiac disease (at Mayo) and I have a niece with celiac disease (DM at age 9 and celiac disease at age 15). I suspect my oldest sister had it (she passed away at 42, but always was a picky eater and never felt too good - her daughter is experiencing some GI problems and I encouraged her to go get tested). The Mayo clinic wanted to do a twin study with my mom but she was in Ohio with 4 kids and they were not going to pay for any travel expenses....anyway,...

Anyone have any similar symptoms experiences with the first signs of DH? I remember having rashes on the insides of my arms at the elbows when I was young, and mom telling me I was allergic to wheat, eggs and wool when I was a baby. Of course, I was fed all kinds of things at the age of 2 weeks back in 1954.

I do not know if it is in my head or not but I feel itchy all over sometimes.

Any help appreciated.

Marilyn

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    • DebJ14
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      Migraines ran in my family, on my father's side.  All of my female first cousins on that side, and our grandmother suffered from Migraines.  Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007.  The dermatitis herpetiformis rash is a blistery, super itchy rash.  When they do the biopsy they take it from non-involved skin that is next to the rash.  If done wrong, the results may not be accurate.  Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy.  But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.  
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      Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
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      By NCalvo822 · Posted

      Definitely useful info. Thank you!
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      By Scott Adams · Posted

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      Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist and an allergist for many years. The allergist has run many tests for my skin issues, but concluded I am not allergic to anything. I do occasionally get hives and am on daily medication to control the hives and other rashes or similar issues. At my last appt with allergist recently, I informed them of my new diagnosis of celiac disease. They said that it has nothing to do with my skin issues. They didn’t even put it in my chart. I know because I read the notes from the visit on the patient portal. However, your post has me second guessing my skin issues and possible connection to celiac disease.
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