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Virus Or Cd ?

emsmom

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emsmom Apprentice
emsmom
Posted

Hi I have a strange question. My 5 yr old DD is going through testing for celiac disease Pedi DR says test results were positive sent to GI dr he "wants to rule everything else out first" very frustrating!! But here is my question. 2 times since Christmas my daughter has had a day where she can not get out of bed her head & tummy hurt so bad. no fever just bad headache and tummy it last for almost a whole day then she is fine. I brought her to the Pedi this past friday when ot happened again she checked her over and said Flu I say no way she was better by that night and fine the next day just like it happened on Christmas eve. Has anyone ever had this happen?

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Guest jhmom
Guest jhmom
Posted

emsmom:

Yes this has happened to my 8 year old daughter too. The last time it happened was after being gluten-free for a couple of months, she cheated while at school. Well the next morning she was out of school, she woke up with nausea, diarrhea, pale, headache and a fever.

I wonder if the test results for Celiac were positive why would a doctor want to rule everything else out? It seems very obvious to me.

I hate to see or hear of little ones suffering and I hope she feels better soon!

JsBaby-G Newbie
JsBaby-G
Posted

emsmom

This used to happen to me all the time when I was younger. The doctors said there was nothing wrong with me. When I was in grade 6 I had to stay home for 2 weeks with a migraine so bad that I was convulsing. They had no idea why! Your doctor is not too bright, he has diagnosis of Celiac yet he wants to test for other things?!?! Not worth it too me.

emsmom Apprentice
emsmom
Posted
  • Author

Called my GI dr yesterday he claims the the test my pedi Dr ran was not a reliable test so he's running some that are more reliable. I told him that this is crazy my DD has just about every text book symptom & a few extras she is in constant pain then to start having days where she can't function is horrible the poor kid is 5 and wants to know why the dr's can't make her belly stop hurting. The dr started to mention IBS and I said NO! Even though i hate to see my DD has to do it I want a biopsy done. so we are still waiting on his blood tests (been over 2wks now) and he is scheduling a ultrasound & bioposy. He also wants me to put her on Prilosec which irritates me because we have tried zantac & tagament before and they did not do anything I feel like he's bringing us backwards instead of forward. Sorry for my ranting I am just very irritated with him. Thus child has been sick since birth and has been through so much I just want her to get better. thank you for listening

hillary-h Rookie
hillary-h
Posted

Hi Emsmom,

My five year old daughter has the same symptoms, two blood tests came back positive for celiac disease. Ronni goes for her biopsy on the 29th of this month its hard to see her in pain and sick most of the time but I was told not to change her diet. Im confused this is all new to me.

Hillary

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

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      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
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      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
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