Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Day


lancpa

Recommended Posts

lancpa Rookie

yea just feel defeated today. So many sensitivities is scary, and somehow isolating. I'm not even going to ask whats next. I'm on my own and would like to date but can't hardly even eat out without exposure at this point. does anybody have positive experiences with new people in their lives who can tolerate health issues and celiac. I'm not feeling energetic and not able to eat anything except sauce free veggies, fruit and meat. And I am broke from buying special food and supplements. So I can't offer altenative dates that cost money. Now I can't have anything with milk or butter or cheese in addition to wheat corn, rice, beans, soy and all the gluten free stuff i react to as well. i even react to potato starch. and all that other alternative grain, except quinoa. I'll adjust. I just want to scream stop. tomorrow will be betterI need to change the way i am thinking about this. If i think about it all as temporary It is managable. Has anyone out there heard of people being able to reclaim foods, or recover at all. i have been able to reverse the related problems but no head way on the foods. Maybe I've had this underlying milk thing all long and that's why I don't get better. Maybe it is good I know about it now and this will be the start of something better. thanks for listening to the rant. I'm ready to try anything, I'm calling my minister and setting up therapy. I'm a therapist and sometimes people heal from physical issues once they work out mental stuff.

Hey has anyone else heard anythng about their hypothalamus being depleated(by alternative medicine testing). So for people who have been malnurished, as I was as a kid, the hypothalmus can be depleted. the hypothalamus and the thyroid have alot to do with operating the Liver, and isn't it the liver that breaks down, or in this case fails to break down the protein chains. Well anyway my hypothalmus is beingsupplemented now and I do feel some better. Hypothalamus can be at fault in depression and ocd, maybe anxiety too, not sure. well, its a new one for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

First off ((((((hugs))))) you are not alone a lot of us struggle but as one who does I know that knowledge is little comfort.

I can only answer from my experience with other intolerances. When I was diagnosed I was not able to tolerate any dairy at all. It took about 6 months dairy free and a very cautious reintroduction of milk products starting with yogert and hard cheeses but I am now able to tolerate milk quite well. If you have an actual casein intolerance that may not be the case for you but for many of us dairy can make a reappearence.

One thing that I learned the hard way was not to overdo any particular food group. When I went gluten-free I started consuming a lot of nightshades (potatoes, tomatoes, peppers, eggplant). I ate them at almost every meal. Within a short time I started to react to them also. I had to eliminate them completely for a few months but now I can eat that family a couple times a week with no problems. I did the same thing to myself with soy not too long ago, I wanted to gain some weight so I started doing supplement shakes 3 times a day, knew it wasn't wise but did it any way and now I am paying for that. :angry::(

The healing process takes what seems like a very long time but when you consider how long it took for us to get sick enough to have celiac be found it makes sense that healing would take a while. I have gone back to eating just meats, fruits, veggies with little processed food it is a eating style that takes some getting used to but for me the inconvience is worth the trade off for good health.

If you are fortunate enough to have any celiac support groups near you perhaps joining might help, but if like me you are not near to one this board is a good substitute. I hope you feel better soon, both emotionally and physically, hang in there your not alone.

lancpa Rookie

Ravenwoodglass,

thanks for your response. We are on the same page about the support group. I just need some sympathy sometimes, and people who aren't experiencing it really can't get it. So thank you. Even just reading through the posts on here makes me feel not so alone. I'm reading up on all this stuff and that makes me feel some better as well. I really do appreciate your kind words. Thnx

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.