Newly Diagnosed With Questions

[mandyann]

I am new here, my first post but I have been reading the board for a while now. I just rec'd my positive gliadin test results back, my IGA came back at 52. I am relieved to possibly have a cause for my odd symptoms but the one thing that I don't have problems with is my stomach. I have read here that Celiac's can have a range of symptoms but is it normal to not have digestive issues? My biggest problem is musle spasms and migraines. I went gluten free this past spring for 6 weeks, being very careful as to what I was eating and still didn't have any relief from the pain. It seems that most find relief within a couple of weeks. I would appreciate any input you all are willing to share.

Thanks!

Diana

[CarlaB]

Stomach problems are certianly the "classic celiac" symptoms, but many never have them. It takes time to heal ... it also takes time to figure out how to be 100% gluten-free with no contamination. I would bet that as you are gluten-free for longer and as you find all the places gluten hides, you will see improvement.

Welcome!

[tarnalberry]

And sometimes we have problems that are independent of celiac disease. I have migraines, that became an issue two years *after* going gluten free, and appear to be unrelated to celiac (or any other food trigger I can identify). I have to take prophylactic medication (topomax) for them, because they would come so often.

But Carla is right, improvement can take a while, and requires being *strictly* gluten free, and may also require identifying any other food intolerances you have.

[Jestgar]

I have no digestive problems with gluten. I get headaches and joint pain mostly. I have a friend who's only symptom is (take-you-out-for-two-days) migraines.

[mythreesuns]

I am new here, my first post but I have been reading the board for a while now. I just rec'd my positive gliadin test results back, my IGA came back at 52. I am relieved to possibly have a cause for my odd symptoms but the one thing that I don't have problems with is my stomach. I have read here that Celiac's can have a range of symptoms but is it normal to not have digestive issues? My biggest problem is musle spasms and migraines. I went gluten free this past spring for 6 weeks, being very careful as to what I was eating and still didn't have any relief from the pain. It seems that most find relief within a couple of weeks. I would appreciate any input you all are willing to share.

Welcome, Diana!!!

You may be ingesting gluten "hidden" in the foods you're eating, or you may have other food intolerances as well. It doesn't have to say "wheat" in the ingredient list to have gluten in it. There are all kinds of products that you wouldn't even think have gluten in them, but they do.

Also, I found that milk gave me headaches just as much as gluten. Have you tried to do without milk (all parts of it) products? Soy gives me problems too, but mostly I get diarrhea from it.

Have you de-glutened your hygeine products? That's something else we don't think about at first, but it could still make you sick.

Some people do feel better in a couple of weeks, but some people do take longer, so hang in there! Don't give up just yet.

[mandyann]

Welcome, Diana!!!

You may be ingesting gluten "hidden" in the foods you're eating, or you may have other food intolerances as well. It doesn't have to say "wheat" in the ingredient list to have gluten in it. There are all kinds of products that you wouldn't even think have gluten in them, but they do.

Also, I found that milk gave me headaches just as much as gluten. Have you tried to do without milk (all parts of it) products? Soy gives me problems too, but mostly I get diarrhea from it.

Have you de-glutened your hygeine products? That's something else we don't think about at first, but it could still make you sick.

Some people do feel better in a couple of weeks, but some people do take longer, so hang in there! Don't give up just yet.

Hi-

Thanks for your advice. I need to take a closer look at my hygeine products. I've been tested for food allergies and nothing really came up, just odd things like alfalfa, green beans and things like that. I was fine on dairy but I do know that when I finally gave it up last spring (on top of everything else I eliminated), that's when I began feeling better. I am very careful with my food, watch the labels and don't eat anything processed. I'm only one week into being gluten free now that the testing is over, it will be interesting to see how long it takes to turn my health around.