Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amino Acid Testing-vitamin Deficiencies-celiac


Isabella

Recommended Posts

Isabella Rookie

Oh, THIS was a good day with the medical field...( sorry had to vent a little) ,

In testing for celiac, I also asked to be tested for amino acids and vitamins.

Well, as I thought I was deficient in magnesium, vitamin D, and B12 ( by European standards). With that I was deficient in the amino acids , phosphoserine and threonine.

After visiting the gastroenterologist last week, he states " you're FINE!" yOU DO NOT HAVE CELIAC, THE TESTS WERE NORMAL. ( I remark that I had started back on gluten and I am having once again great pain inmy abdominal area.) Oh, NO... you are constipated. ( How can I be constipated if all that comes out is bright yellow liquid?) You need to take tablespoons of wheat bran each day"( I look at him in amazement, and say, I am ALREADY feeling quite sick with just a little gluten!??) No, no, take the wheat bran ...we won't even go into what happened to me the following week- I did nOT take the bran, only added some wheat to my diet , and HORROR!

I demanded tests...when they saw the results, here's the advise given:

My internist told me that "I had more time than he, and that I should look into it; AND by the way, I honestly do not know about amino acids and I know of no doctors who do"...on to the neurologist...

...her nurse told me that the doctor believes that whenever you test as many things as those, you are bound to have a few highs and lows and it's nothing. These two low acid values have NOTHING to do with my immense collection of neurological symptoms ( have they read any medical books on these two acids?)....to the rheumatologist,

"oh, you look GREAT! Just the D is a little low 25 ( 32+ is normal) ...nothing to worry about.

And the magnesium, you may want to take SOME."..

SOME?

I REALLY need to find out how to get in touch with a doctor very well versed in enzymes and amino acids!

has anyone else here has amino acid problems? How did you figure out the underlying cause and how much to take? Thanks again,

Isabella


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mellie Newbie

I have NOOOOOO idea of course....but just wanted to chime in and say it definately sounds like it's time to make a switch of Drs. I've learned in dealing with our infertility even that you so often have to be your own advocate. And I refuse...REFUSE to go to a Dr. that treats me like that and would even think to say things like 'you have more time YOU research it'!!!! I'm just amazed at how rude and insensitive people can be!!!! Hoping you find the right Dr. soon!!!!!! :(

Lymetoo Contributor

I see a dr in Missouri who does testing for both.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.