Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Need More Of Yall's Wonderful Advice!


ptkds

Recommended Posts

ptkds Community Regular

My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Maybe she won't eat because eating gives her a tummy ache?

She needs meat to get iron. If she doesn't get enough protein and iron, her brain can't develop properly.

Do you think she might eat if you set out some food on a small kid's table with chairs? I know my grandchildren love sitting at their own little table. Then, instead of you trying to get her to eat, you just let her know the food is there when she wants it. Hopefully, she'll go and help herself now and then (maybe small amounts at a time, but sort of snacking throughout the day). There is no guarantee it will work, but worth a try.

Carriefaith Enthusiast

She may just not want to eat because she may associate food with feeling sick. When I was really sick with celiac disease all food seemed to make me sick. I would get explosive gas, bloating, and major D from almost anything I ate. I used to have major D almost every morning and I would usually feel ok stomach wise until I started eating again.

I suggest getting her tested for celiac disease. Just make sure there is gluten in her diet if you decide to gets tests done. If she is gluten-free, then she may get false negative results.

I also suggest getting food allergy testing done.

Daxin Explorer

It possible that she could have an upset stomach. Either from Celiac or some other source.

My DD is a little over 2, and she goes through a few days here and there where she does not eat.

Other possible reasons could be -- teething, ear ache etc. Does she have a fever? How long has this been going on? I would suggest that if she is not eating "normally" in a couple of days, then you may need to take her to see a doctor.

I hope that helps.

TCA Contributor

My son was like this until going gluten-free. He's still not a huge eater, but more normal. He hasn't been eating the past couple weeks b/c of a nasty cold and he's losing weight, but hopefully he'll feel better soon. After about a month on the diet he said out of the blue ,"Mommy, my tummy doesn't hurt anymore." I think that's why he wouldn't eat.

eKatherine Apprentice

It's also true that toddlers, being really small, have fairly low caloric requirements between growth spurts. It is normal for it to appear that they are eating almost nothing.

shayesmom Rookie
My dd may have celiac disease. We are going to the GI dr on Monday. Anyway, she doesnt' seem to be eating much. I am not sure if it is from celiac disease or something else. She is 16 months old, and here is what she ate today: 1.5 bananas (she threw half of the 2nd one on the floor), a little bit of milk, 1 pb&j sandwich and a whole cup of milk. That is it. No snacks in between or anything. She never acted like she wanted food. She NEVER needs a snack between meals. She usually eats 3-4 times a day, but recently it has only been 2-3 times. Toddlers just need more food than that!

So, what do you guys think?? Could it be from celiac, or something else?

Thanks,

ptkds

Personally, I agree with a pp that she is probably associating feeling ill with eating due to Celiac. My dd was the same way up until we took gluten out of her diet. I swear she ate just enough not to starve! When we went gluten-free, her appetite seemed to triple and now she eats very healthily. We do have days where her appetite is less than others, but it's for a day here or there....or a meal here or there. It usually depends on the atmosphere (if we're at a party or other social venue she barely eats as she's too "busy"). In any case, the difference was quite profound.

I really hope that the biopsy is scheduled for soon. I hate the fact that this takes so incredibly long. Especially when you have a potential answer in sight and you can't even try it!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



azmom3 Contributor

My little guy doesn't each much either. I always carry something in my purse for him so I can sneak in any small amount of calories any where I can....a snack while he's in the stroller, at the park, wherever. I also share a bite of anything I'm eating as sometimes he's more interested in mine, (probably just because it's not his.) Maybe these aren't the best eating habits to establish, but until he is able to put on a little weight, I will try anything and this does seem to help for us. Sometimes, he'll eat 6-8 times a day, but maybe only have 1-2 bites of something each time. We just keep trying. I agree though that a toddler this age doesn't need a whole lot so sometimes it appears they're not eating much when they're really getting enough. Good luck!

Guest Jordan

When I read your posting I couldn't believe how similar it sounded to one I posted on a different site a few months ago. At the time my 15 month old was barely eating and I could not figure out why. Finally the doctors found out she had celiac (I had never even heard of it or gluten until then). Even when the doctor told me about it I was very skeptical b/c I figured it wasn't anything serious - just a extremely picky eater with a small appetitie. I would never believed how big of a difference a change in diet has made. She does eat more (without any fighting) although still quite picky about what, but more importantly she is completely changed in behavior. Not whiny or clingy anymore. She wants to run around and play. She is no longer what I used to think was "shy" (she really was feeling lousy" but is now as people often remark a "social butterfly." Anyways I just wanted to let you know that your posting really struck a cord with me and I hope the best for you and your daughter.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.