Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question For The Veterans


emcmaster

Recommended Posts

emcmaster Collaborator

When you were first gluten-free, did you have random days where you had some glutening symptoms but not all? I ask this because I've been gluten-free for 6 months and occasionally will have a day or two where I have the bloating and pain, but not the other symptoms. And since it only lasts for a day or two, I know I haven't been glutened or had a reaction from my other intolerances.

Am I just healing and having a few bad days because of that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

It could be from something else; another food intolerance, transient virus, GERD, PMS, etc.

Or you have :ph34r: hidden gluten in your diet somewhere.

Matilda Enthusiast

...

aikiducky Apprentice

At six months I think I was more or less bloated all the time. :) Yes it was very much up and down and not always because of a glutening. Bloating is still the last thing to go away after I have been glutened, it's the most stubborn of my symptoms. But nowadays I'm not bloated all that often (two years on the diet).

Pauliina

emcmaster Collaborator

Thank you for the replies! I suspected other intolerances, went on an elimination diet and still had the random bad days. I added back all the foods I suspected and most weeks, have 1 or 2 bad days a week unless I've for sure been glutened or consumed one of my other off-limits foods.

It makes me feel a lot better to know that you were experiencing bad days sometimes at 6 months in. (Not that I'm happy you were feeling badly, just happy to know I'm not abnormal!)

Rikki Tikki Explorer

Hi Elizabeth:

It took me a couple of years to feel really well. But I would suspect hidden gluten or cross contamination. It was so overwhelming for me for a while, just trying to find out what all contained gluten. Watch your medications, they use gluten in some,.

Best of luck and good to meet you! :D

Guest nini

It took me about 2 years to feel almost human, but I'm still having bad days 3 1/2 years into this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

After 17 years I can't remember how long it took me to feel human again. But, there will always be ups and downs, although not so many over the years. Bloating is a problem with almost all of us and I'm not so sure that it is always caused by gluten. I seem to get it sometimes when I'm simply under stress and not eating a proper balanced diet. Sometimes salads will cause it and sometimes an over abundance of fruit. I know we tend to jump on a gluten contamination as soon as we start feeling uncomfortable, but there are times when that is not the cause.

Hang in there, the fact that we feel better over all is a good thing! :D

emcmaster Collaborator

A big thanks to all you who replied!

I'm undiagnosed and am keeping my fingers crossed that this is it and that I won't go back to feeling badly all the time!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.