Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Now?

schuyler

Recommended Posts

schuyler Apprentice
schuyler
Posted

When I was first diagnosed with Celiac back in Jan., I had no problem giving up gluten. In fact, I was excited to finally be doing something to help myself feel better. I never went through any kind of depression, gluten withdrawls, self pity or anything else.

Why am I feeling that way now? Last week, I was almost in tears when my family decided to order pizza and the boys and I had to eat gluten-free pizza. I love my gluten-free pizza, so why was I so upset? Monday at school, one of my professors passed out donuts. I never liked donuts even when I could eat them, so I have no idea why I was so upset that I ended up leaving class. Things like this have been happening almost daily.

I understand that it probably has something to do with the fact that I'm finally starting to feel better. The thing that I don't understand is why am I getting so upset over things that I never liked before or things that have a replacement that I like just as much as the original.

How can I get past this?

Danielle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

When I'm feeling this way, I usually find that it's because I don't have a choice. I may like what I have fabulously, I may hate what others have, but regardless of that, I have NO CHOICE in the matter. (Well, I do, but only the stupid choice, in my mind. And I find that frustrates me. Usually, I just have to let it pass, remind myself that, really, I do have a choice, but I'm making the smart choice, and that there are lots of other choices I do have. No magic bullet or profoundness that gets me through it, just some passing time.

heathen Apprentice
heathen
Posted

oreo commercials make me cry--and driving past my favorite Italian restaurant. when i get down, i try to console myself with one of my favorite "normal" foods. for instance, the watermelon in your pic. hope things get better.

and you are not weird--all of us have our own timing in the grieving process. :)

Lisa Mentor
Lisa
Posted

Danielle:

Time, just time. It truly is an emotional roller coaster...with many ups and downs. This will pass as time goes by.

Make sure that you are getting adequate supplements that will help your state of mind. B-12 is a biggy, as well as folic, and iron.

I am sure that other will post with additional information.

Hang in there, it will get better.

Lisa

eleep Enthusiast
eleep
Posted

You know, this might have something to do with delayed grieving -- if all the stuff about grieving being a process is correct. That is, once you get through the excitement of having something you can do to make yourself feel better -- and, of course, all of the distraction and stress of making major life changes -- you settle into a routine and begin to be able to process your feelings more -- you start to grieve more thoroughly and maybe realize that you're missing things you didn't originally realize you had an attachment to.

eleep

jennyj Collaborator
jennyj
Posted

I agree with eleep. I think sometimes we do grieve for things in different stages. I'm like you in not caring much for doughnuts but when I see a dozen on a table I yearn to take a bite. I think it is just normal for us.

schuyler Apprentice
schuyler
Posted
  • Author

So I'm normal after all!! :D:D:D

I guess I am greiving the loss of foods that I had eaten for 20+ years. You kind of grow attached to things after that long!

I made a nice gluten-free cake this morning, and the boys and I have been pigging out on it all day! It was so good (yes, was; it's gone now!)! I agree that I should focus on what I can have as opposed to what I can't. I can have a great gluten-free cake! There are plenty of things that I've eaten all my life that I can still have (fruit, veggies, etc).

Thanks for reassuring me that this is all normal :D .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748
    Clare Durham
    Newest Member
    Clare Durham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.