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- DebJ14 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11Newly Diagnosed
Migraines ran in my family, on my father's side. All of my female first cousins on that side, and our grandmother suffered from Migraines. Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007. The dermatitis herpetiformis... -
- trents replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11Newly Diagnosed
Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.- 1
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- NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11Newly Diagnosed
Definitely useful info. Thank you! -
- Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11Newly Diagnosed
It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends... -
- NCalvo822 replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11
Newly Diagnosed
Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist a...
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Migraines ran in my family, on my father's side. All of my female first cousins on that side, and our grandmother suffered from Migraines. Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007. The dermatitis herpetiformis rash is a blistery, super itchy rash. When they do the biopsy they take it from non-involved skin that is next to the rash. If done wrong, the results may not be accurate. Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy. But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.
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Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
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By Scott Adams · Posted
It's possible that your doctor wants you to do an endoscopy to confirm the diagnosis, and if that is the case that could be why they don't want you to go gluten-free before that procedure is done. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Hi! Your history is interesting as I see parallels with my history. I too had migraines since childhood, but they run in my family so I didn’t think there could be any connection to the celiac. Also, the migraines have tapered off after menopause. I too have trouble walking in a straight line. And yet another similarity is I have been seeing both a dermatologist and an allergist for many years. The allergist has run many tests for my skin issues, but concluded I am not allergic to anything. I do occasionally get hives and am on daily medication to control the hives and other rashes or similar issues. At my last appt with allergist recently, I informed them of my new diagnosis of celiac disease. They said that it has nothing to do with my skin issues. They didn’t even put it in my chart. I know because I read the notes from the visit on the patient portal. However, your post has me second guessing my skin issues and possible connection to celiac disease.
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