Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Advice


AmyandSabastian

Recommended Posts

AmyandSabastian Explorer

I am so needy lol. But I trust all of you so much. I am not sure if I need to be posting this on my website or here. I have no idea if it celiac disease related or not. Here I go:

When Sabastian went gluten-free in May we saw night and day differences. And right away within the first 4 days. All was well up until 2 weeks ago. I dont know if its a phase or growth spurt or just teething (which I dont see any). He is started to get cranky and super clingy again. His stools are a little softer than normal. His belly is getting hard with each meal (not sure if he is over eating or not) he is eating more than normal again. He is waking crying again!!! Its really starting to look like old times. I swear he isnt eating gluten gosh I hope not I am checking so well. I am just at my wits end with a cranky baby. He is 8 1/2 months old and is trying to walk so bad, which could be it too. He gets so tired when he is learning. But the last 2 days he has skipped nap 2 and 3 which has made him just impossible. I might be over reacting but with no doctor in the state that knows anything about celiac disease I have no where to turn other than you. Any advice would be so helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Alexolua Explorer

Is it possible there could have been cross contamination somehow? Is your household completely gluten-free? If not.. if there happens to be crumbs on the floor, and he crawls through them.. could get some on his hands, and as soon as he puts a hand in his mouth, then there goes gluten in him.

Oh maybe a new product he started up on, has some gluten hiding in it? Keeping a food journal, and making notes of how he is doing could help track things too.

Or maybe it could be the trying to walk, he caught a cold.. or something.

Hope this helped somehow, and good luck! =)

AmyandSabastian Explorer

I forgot to mention one thing, and this may sound stupid. I have noticed that his little nose is rosey. Just the tip but it has been red. Isnt that weird?

Alexolua Explorer

Maybe? I'm not much of an expert at this, sorry.

Oh, and one thing I forgot to mention.. you said he was teething? Maybe something you've been giving him to chew on has gluten on it somehow?

Well trying. =)

AmyandSabastian Explorer

No he MIGHT be teething, but no redness or swelling so I havent even thought he was. But because of his age everyone says "Oh he must be teething"

TaylorsMom Rookie

I am far from an expert but I thought I'd give a suggestion anyway. Is he lactose intolerant as well? Is it possible, since at 8 1/2 months I'm sure he's trying new foods, that he has recently had a new dairy product and he's not handling it well? I'm not sure of your story before going gluten-free, so I may be way off. If so sorry in advance. You are right to be concerned though, especially with the looser stools and the hard abdomen. Those two things, in my opinion, signal that it's not a phase or teething but rather something that's being ingested.

Megan

woots Newbie

again, i am far from an expert but have learnt alot in the last 3 months. my daughter seems to have gone through a similar set of circumstances as you have already mentioned. she was diagnosed some 3 months ago with celiac disease and in the last three weeks we have spent another week in hospital. the reason all stems around her being milk intolerant also so she is on a milk free and gluten free diet. The doctor over here has also placed her on a soya free diet for good measure in order to give her a few months of a balance diet where her immune system and intestines can grow again.

So in a nut shell, she is on a gluten, milk and soya free diet. the soya will be for about 3 -5 months but the milk for a few years yet.

she has really picked up and the change has been incredible, she is running around and putting weight on which is a wonderful sight to see.

dont know if that would have been of any help, but i am learning myself at present.

mark wootton

Nottinghamshire

England


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



reidei Newbie

From another non-expert....I have been told that redness on extremeties is a sign of allergies....my nephew gets bright red ears (for example) when he's

exposed to something he's allergic to. The allergist told his mother to look for

this shortly after eating certain foods as a sign of allergies.....I would consider this as a possibly reason for a red nose...

For what it's worth - hope it helps....

AmyandSabastian Explorer

Well man I have some updates for you. In this one Sabastian got his first 2 front bottom teeth this week!!! He is doing great and has become a wonderful biter!! All symptoms are gone. YAY.

celiac3270 Collaborator

Congratulations!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,070
    • Most Online (within 30 mins)
      7,748

    mike.carp22
    Newest Member
    mike.carp22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.