Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different Foods... Different Symptoms

clhsc

By clhsc
in Food Intolerance & Leaky Gut

Recommended Posts

clhsc Apprentice
clhsc
Posted

Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have problems with dairy and sometimes soda.

Ursa Major Collaborator
Ursa Major
Posted

Hi, and welcome to this board. Yes, I do react quite differently to foods I am intolerant to. Which foods bother you? And what are your symptoms? If you tell us more, we will be able to hopefully help you better.

Budew Rookie
Budew
Posted

Welcome. I joined last Monday. I hope someone can give you pointers on the skin. My sister and my mom and I all have celiac and a variety of skin problems. Dermatologists can help but we usually got some type of cream. Cortisone, Meto creme, triamicinolone is working for me now. I have more than white bumps.

About food sensitivity. I am still unraveling my mystery. Read and post questions and you will learn a lot.

Before I was celiac I became vegetarian. 25 years ago.

I eliminated eggs, (except in bake goods and noodles) about 15 years ago.

I was diagnosed celiac 5 years ago. Stopped gluten. I got really sick for 2 years. I ended up not being able to keep anything down.

So, I figured out my stuff so far by elimination.

I began with white potato, margerine, salt, water. 3 months later I realized the iodine in the salt was a problem.

For 3 months I tried to eat a balanced gluten free vegetarian diet with out processed foods. I was still sick.

I eliminated dairy. I was still sick. I eliminated night shade vegetables. I was still sick. I eliminated salycilcates(wrong spelling). I am still sick. Adding enzymes, right now. I am also wondering about corn and soy.

Well welcome to a great group of folks who have a wealth of experience. Being a member for only one week has given me direction, hope, and the understanding that was so lacking. Thanks everyone!

Simply-V Newbie
Simply-V
Posted
Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

I'd hate to tell your doctor he's wrong about the bumps.. but we've been discussing this on Delphi Avoiding Corn and several of us get it as a symptom of getting into something we're allergic to.. aka allergic reaction, much like breaking out with acne can be because of allergies. My bumps only went away when I switched laundry soaps. They come back now and then if I get into something, but they go away as soon as my system is clear of the allergen.

And yes some of my food intolerances just make me a little tired, while others (usually my IgE allergies) will mess me up for days.

Budew Rookie
Budew
Posted

Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

clhsc Apprentice
clhsc
Posted
  • Author
Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

clhsc Apprentice
clhsc
Posted
  • Author
Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

I guess you live and learn! Thanks for saving me from a tremendous amount of pain.

I know it seems like I am asking tons of stupid questions (at least I feel I am), but my doctor told me to try the diet and didn't really give me any information. This site has been a life saver!

Budew Rookie
Budew
Posted

I am amazed everyone seems to get glutened and realize a reaction.

I don't know that I have been glutened by mistake since I as diagnosed.

Since being diagnosed I have felt worse, not better.

I don't vomit as much, and the skin seems to be slowly improving but on the flip side I now have headaches fevers, sluggishness, mindfog, memory loss, a mass in my stomach (no one seems to be alarmed about) and sometimes for no apparent reason I just hurt all over, lose my mind and lay down too limp to move. These episodes last 5 minutes to 15 hours.

I am hoping that I can really get on board taking enzymes. I realized last night that I was having trouble taking l-glutamine with .5 grams and my doctor wants me to take 40 grams. Any advice on how to get from 1 gm to 40 gms with the least amount of trouble?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,032
    • Most Online (within 30 mins)
      7,748
    CE1963
    Newest Member
    CE1963
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.