Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need A Good Gi In Nm


ylimaf

Recommended Posts

ylimaf Rookie

If anyone knows of a good GI doctor in Albuquerque, NM? There are no support groups here either. The pediatrician has been willing to read a book to help them understand it better but I still cant find a good GI for the kids and me. I am fortunate that the OB has a nurse with celiac disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mamato2boys Contributor
If anyone knows of a good GI doctor in Albuquerque, NM? There are no support groups here either. The pediatrician has been willing to read a book to help them understand it better but I still cant find a good GI for the kids and me. I am fortunate that the OB has a nurse with celiac disease.

Hi there !

My son saw Lucy McLoughlin at UNM, but I didn't find her particularly helpful. Dr. Fahl (also at UNM) is really nice, maybe you could give him a shot ? My only caveat is it'll probably take a couple months for your kiddos to be seen.

baldridgem Rookie
If anyone knows of a good GI doctor in Albuquerque, NM? There are no support groups here either. The pediatrician has been willing to read a book to help them understand it better but I still cant find a good GI for the kids and me. I am fortunate that the OB has a nurse with celiac disease.

There are support groups here in Albq. Just type Celiac Support Groups in

Albq. in your browser to get a list. I don't belong to a group yet. I've just been

dx with gluten sensitivity and am still trying to started on the GFD.

As for a GI-well I haven't found one yet that seems to know much about

Celiac Disease. The last one I saw told me flat out that if I don't have chronic

D I don't I'm not gluten sensitve. <_<

Mamato2boys Contributor
There are support groups here in Albq. Just type Celiac Support Groups in

Albq. in your browser to get a list. I don't belong to a group yet. I've just been

dx with gluten sensitivity and am still trying to started on the GFD.

As for a GI-well I haven't found one yet that seems to know much about

Celiac Disease. The last one I saw told me flat out that if I don't have chronic

D I don't I'm not gluten sensitve. <_<

Who was that, if you don't mind my asking ?? I can tell you that my symptom is chronic constipation (which is less common, but not unheard of), and I know that if I eat glutens I feel TERRIBLE - and I've only been gluten-free for a couple weeks.

ylimaf Rookie

My baby at age one nearly died from starvation (he was eating almost too much) but a doctor at UNM, after recognizing he had gained 4 lbs in one month after going gluten free by the request of the pediatrician, refuse to do a biopsy. The pediatrician wrote him up as beign gluten intolerant. Now we have a chance to see a different doctor. I have such good pediatricians. If I get good results Ill let you know.

Mamato2boys Contributor
My baby at age one nearly died from starvation (he was eating almost too much) but a doctor at UNM, after recognizing he had gained 4 lbs in one month after going gluten free by the request of the pediatrician, refuse to do a biopsy. The pediatrician wrote him up as beign gluten intolerant. Now we have a chance to see a different doctor. I have such good pediatricians. If I get good results Ill let you know.

Good ! Please do.

Our pediatrician is Dr. Koil (NM Pediatrics/After Hours Pediatrics) - we just love him to death. :)

Also, I'd be curious to find out which doc you had the problem with at UNM, if you don't mind.

baldridgem Rookie
Who was that, if you don't mind my asking ?? I can tell you that my symptom is chronic constipation (which is less common, but not unheard of), and I know that if I eat glutens I feel TERRIBLE - and I've only been gluten-free for a couple weeks.

It was a Dr. Klien. My pcp refered me to him for evaluation--

she thinks I should have a colonoscopsy (sp).

He walked into the room with the referal, my medical records

and a new patient quiz I filled out and said " Why are you here? HUH?

I explained my symptoms etc. Thats when he told me I could'nt be

GS. I corrected him on that point. Then to top it all off he asked me

"Well, what do you expect us to do for you?"

I told him "Nothing, I'll just do the GFD for now and consult with my pcp.

I've been gluten-free for about a month now with some improvement in symptoms.

There's a lot to learn about this new lifrstyle.

Mary


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mamato2boys Contributor
It was a Dr. Klien. My pcp refered me to him for evaluation--

she thinks I should have a colonoscopsy (sp).

He walked into the room with the referal, my medical records

and a new patient quiz I filled out and said " Why are you here? HUH?

I explained my symptoms etc. Thats when he told me I could'nt be

GS. I corrected him on that point. Then to top it all off he asked me

"Well, what do you expect us to do for you?"

I told him "Nothing, I'll just do the GFD for now and consult with my pcp.

I've been gluten-free for about a month now with some improvement in symptoms.

There's a lot to learn about this new lifrstyle.

Mary

What an ass !! :angry: I work for UNM and it looks like he was probably a resident. There's no Klein listed as an attending - not that that's an excuse for him treating you badly. God it probably took you forever to get the appointment too - and then to be treated like that....that's just pathetic.

I hope you have a supportive PCP. DH and I go see Dr. Jacobi over at Southwest Medical. We haven't had the opportunity to tell him about us doing the GFD yet because we haven't had to see him since we figured out we're GS a couple weeks ago. DH has been able to quit taking Zantac and is hoping to come off his blood pressure & cholesterol medications - and I know that'll make Dr. Jacobi happy. I think he'll be supportive, he's a nice guy. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.