Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Celiac?


curious

Recommended Posts

curious Newbie

I was wondering if the symptoms of celiac come on gradually or all at once? Approximately 1 year ago I started to notice a connection between eating pasta and the discomfort and reaction to the food (similar to the stomach-flu) within 20-30 minutes of eating pasta.

I have also noticed that occasionally after eating some bread products (wheat bread, homemade pizza, etc.), I have the same symptoms. Does this make sense? Did anyone else experience these symptoms? Did the intolerace for gluten come at once or gradually?

Also, when I mentioned the food concerns to my family doctor, he said that I should be losing weight if I really had celiac and told me to look at the WebMD website. Do people lose or gain weight with celiac? Or both?

One more question...What type of doctor would possibly specialize in celiac? (Should I go to my family doctor or would seeing a gastroenterologist be more beneficial?)

Thanks for answering all of my questions. I really appreciate it!

P.S. Any advice is helpful--I am searching for answers. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Hi Curious and welcome to the board! :D

I don't have many answers as I got tested by Enterolab.

I do know that you don't have to be losing weight to have celiac. That's an old belief.

If you have stomach distress after eating stuff with gluten in it then it would seem you are gluten intolerant at least. That pretty much means the same thing without the damage yet.

You should be able to go in and ask you doctor to run the celiac panel. There are five tests in all, so you'd want to make sure your doctor knows to run all of them.

Even if the blood tests come back negative you could still have gluten sensitivity/intolerance. You may be in the beginning of this and have numbers that wouldn't register on a blood test.

You could forego the blood test and go through enterolab (who does a stool sample test). They are self referral (Open Original Shared Link).

You could also just go gluten free on your own and see if you notice an improvement. There are other things you'd need to learn as far as products and kitchen stuff that would need to be replaced. Gluten is in a lot of things.

GFBetsy Rookie

Welcome, curious!

Celiac can have sudden onset. It is occasionally triggered by times of severe stress (emotional, physical, whatever). My sister knows of a girl (a friend's sister-in-law . . . doesn't this start to sound like an Urban Legend? "I swear it happened to a relative of a close neighbor of mine! Or was it a neighbor of a close relative? :blink: "). Anyway . . . my sister knows of a girl whose celiac suddenly appeared in the middle of her second pregnancy. Why not her first? Who knows? But the answer to your question is: "Yes, celiac symptoms can come on very suddenly." I'd go to the NIH website, print a bunch of stuff for your GP, and take it in for him to read when you ask for the tests, highlighting anything that pertains specifically to your situation.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.