Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bony Tori


jmik

Recommended Posts

jmik Newbie

Does anyone else have very large jaw bones? I have always had bony growths extending from my lower jaw. If you look uner my tongue they are quite large and bizarre looking, and according to my many dentists they are called bony tori. I don't notice them much, except when trying to get my teeth xrayed by the dentist or back when I was fitted for a retainer, but they have gotten so much bigger in the past year. Recently I was wondering if bony tori are related to celiac disease. I know there is a higher incidence of kidney stones. I have a theory I want to put out there and get feedback on: my body's tranglutaminase (from gluten exposure) was getting bound to calcium and then couldnt be excreted by the kidneys (like in the kidney stone theory) but instead of giving me a painful kidney stone, this brotein-bound calcium built up in my mouth. Now I have very large bumpy jaw bones under my tongue and also on the sides of my jaw.

If this is indeed why I have such remarkable bony tori (Ive been told by dentists I could be in dental textbooks) then I wonder if its permanent but just wont get bigger now that I'm gluten free, or if they will get smaller... Time will tell, I guess.

I am really hoping someone else out there knows what Im talking about...

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



slockhart Newbie

Hi. I had never heard of Bony Tori until now - after reading your email. I have what you describe under my tongue (and have just looked at some photos on the net to be sure). No dentist has ever mentioned them. I even had a bunch of dental x-rays taken recently (2 weeks ago) and no one said a thing. I had noticed them but figured they were normal. Since no mention had ever been made I haven't given them much thought. Until now. I've been doing quite a bit of research on diseases associated with gluten intolerance and have not noticed anything on bony tori...but then I wouldn't have because I didn't know what it was.

Fascinating!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.