Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hmmm, Could It Be Soy?


JerryK

Recommended Posts

JerryK Community Regular

I gave myself a good week off of anything even potentially containing gluten for a week. Then I gave myself a good solid gluten challenge. I ate bread and all the gluten I could find. Not much reaction.

Perhaps I got a little constipated, perhaps I felt a little tired and lethargic, but not a whole lot of reaction....

Try as I might, I couldn't seem to make myself sick.

So yesterday at lunch I ate one of those Asian Chicken Salads from Mickey Ds. Dumped the packet of soy

sauce dressing and almonds on it and chowed down.

Tuesday evening, I started having stomach cramps, cold sweats and feeling like I was going to hurl.

Now I'm starting to suspect my problem is something other than gluten. I'm starting to suspect

Soy...or even Almonds as the potential culprit. I do have a tendency to eat chocolate bars, with Almonds of course, before my long running stints.

There are just so many things it could be, I don't know where to start. What do I do? Keep a food diary and start introducing foods one at a time and see what makes me sick. Do I find an allergist?

Arrgh! Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

It could be soy, or it could be McDs yuckiness in general, or something else entirely. You might try an elimination diet. It's almost impossible to know what's going on if you only cut out gluten for a week. I'd give it 3-4 weeks at least.

Also remember if you're feeling lethargic and constipated...you are reacting to something...or something's not right that can be fixed. You don't need a life threatening reaction to justify eliminating (insert offending food here) from your diet :):)

Matilda Enthusiast

...

lonewolf Collaborator

Yes, it could be soy - it could be several things. You need to stay ________-free for longer than a week to figure it out or just go get some testing. One way to home test is to eat nothing but rice, lamb, fish, carrots, lettuce, kiwi and sunflower seeds for a month. (Maybe add a few other low allergenic veggies and fruits.) Then add one new food each week to see what happens. Or eliminate one food at a time for 6 weeks and see if anything happens.

It sounds like you don't want to have gluten intolerance really bad.

Simply-V Newbie

Knowing where to start isn't easy. Keeping a food diary is going to be a good idea. I'd also recommend that you see a doctor for testing. Even if its just the Celiac panel, to rule it out.

It sounds like you're thinking you're having delayed reactions? If so, an IgG foods test might be of a lot of help, as delayed reactions are hell to pinpoint.

Your best bet is going to be eating simpler til you figure this out. Processed foods like McD's are going to be out, because they contain a ton of different food ingredients and it is nearly impossible to pinpoint which of those it could be.

JerryK Community Regular

The problem is, I belong to Kaiser Permanente and they are basically crisis management only. If I go in to the office bleeding out of several orifices, they would check it out. If I go in there and say my stomach hurts and I think it might by Gluten or Soy, they're going to give me the usual condescending skeptical crap you always get from HMOs. I freaking hate it. Doctors lament the fact that men never go to the doctor, this is why....they don’t DO anything. I bet it costs 6K a year for my insurance and what the hell do I get for it? Penicillin if I get strep throat, that’s about it....

It's not that I don't want to have gluten intolerance, it's that I seriously doubt my HMOs ability to diagnose it, or much else...

End of rant. Jerry

lonewolf Collaborator

When I first got sick I had Group Health, a big HMO like Kaiser. They were happy to send me to a specialist - with a 6 week wait and happy to give me all kinds of drugs. When I asked about changing my diet the doc. told me that diet changes were all "quackery". (This was a rheumatologist, not a GI.) Then they didn't want to help me any more.

I went to a naturopath on my own and paid out of pocket for an ELISA test. I believe that it saved my life.

I realized at that point that my health was in my hands - no one cared about me or my health as much as I did. I've been given no help at all by mainstream doctors and my naturopath has only helped a little. It's been up to me to figure out what I can and can't eat and when to try to introduce new foods.

You might never get a diagnosis, I've never officially been diagnosed with anything. The mainstream doctors told me that the tests I had done were useless and to "eat anything you want and take medications" if I was still having problems. I chose to listen to what my body was telling me and stopped wasting time and money on doctors. My health is not perfect, but good enough to teach PE, coach basketball and do 1-2 small triathlons every summer. If I'd waited for my HMO to help me I'd either be dead or in a wheelchair living on horrible medications.

Eliminating foods from your diet might be a hassle, but it's not expensive and will ultimately tell you better than any test which foods you can and can't handle.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamazoocrew Newbie

Soy is also a common allergen and irritant. Perhaps cutting out some of the major allergens like soy, eggs, dairy, nuts, corn, etc. in addition to the foods with gluten and giving your body a rest for a month would be a good idea. Then introduce one of the suspects @ a time so you can really monitor the consequences. I have an HMO as well and I understand your frustration. Try the elimination diet and really watch what happens when a single food is introduced.

JerryK Community Regular

Thanks so much about the food allergy panel advice. I didn't know such a thing existed. I thought

skin pricking was as high tech as it got. I think I want to go with that, because I have several foods

I suspect besides Glugen. Specifically, Almonds and Soy. Jerry

  • 3 weeks later...
Shalia Apprentice
Thanks so much about the food allergy panel advice. I didn't know such a thing existed. I thought

skin pricking was as high tech as it got. I think I want to go with that, because I have several foods

I suspect besides Glugen. Specifically, Almonds and Soy. Jerry

I'm going to do the A lcat testing. (Take out the space and google it. It changes the words here on this board.) It looks like a really good test.)

They'll test for more things than just gluten, which is nice. Of course, you can always Enterolab. Did Enterolab wtih my son and was very satisfied.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.